Webinar 5 (Past Event)<\/h2>\r\n
\u00a0Sujet :<\/strong> Growing your influence as a patient partner<\/p>\r\n Date :<\/strong> May 12, 2025<\/p>\r\n Heure :<\/strong> 12:00 PM PDT \/ 3:00 PM EDT<\/p>\r\n Enregistrement <\/a> Dawn Barker<\/strong> is a passionate breast cancer advocate, survivor, and founder of NUY50, a campaign dedicated to empowering underserved communities, particularly Black women, through breast cancer awareness and advocacy.\u202f<\/p>\r\n As a tireless champion for equity in healthcare, she bridges the gap between researchers and patients, ensuring that scientific advancements are accessible and inclusive. Through storytelling, advocacy, and patient-partnered research, she amplifies the voices of those most affected by disparities in breast cancer care.\u202f\u00a0<\/p>\r\n Her work continues to inspire change, driving meaningful progress in both research and community health.\u00a0<\/p>\r\n Trudy Flynn<\/strong> is a dedicated advocate for patient-centered care and an experienced patient partner in health research. Trudy began her work in patient engagement with CIHR- IMHA, where she collaborated with other patient partners to develop a set of online, self-directed, free modules applicable to any research where patient-partners are engaged. As a member of the Maritime SPOR Support Unit patient engagement community, Trudy has actively collaborated with researchers to enhance healthcare outcomes in many areas of research. With a strong belief in the power of lived experiences, Trudy champions patient engagement to ensure diverse perspectives are represented in research and decision-making processes. Trudy is the Chair of Fibromyalgia Association Canada. Trudy has lived with fibromyalgia for over 30 years.\u00a0<\/p>\r\n Susan McKenzie<\/strong> is a lifelong communications and fundraising professional, having held numerous senior fundraising roles. These roles include major gift fundraising and the strategic planning and implementation or fundraising plans for large organizations that include universities, hospitals, non-profits, and other charities. She holds a Master of Arts in English from the University of Waterloo.\u00a0<\/p>\r\n Sue received a kidney transplant from her sister-in-law in 2010. Her lived experience as a kidney patient translates into a deep passion for improving the care that kidney patients and donors receive and increasing access to kidney transplant for those who need one. As such, Sue dedicated herself as an advocate for kidney and transplant patients. She is the Co-Founder and Chair of the Transplant Ambassador Program<\/a> and holds the positions of President of the Kidney Patient and Donor Alliance Canada and the Renal Patient and Donor Foundation Canada as well.\u00a0<\/p>\r\n As a patient partner co-author published in over 13 peer-reviewed papers since 2017, Sue provides advice and support for numerous other research and implementation projects. She hopes that kidney-related health care systems improve their care and access for kidney patients across Canada.\u00a0<\/p>\r\n <\/p>\r\n Duncan<\/strong> began his military career in 2000 by attending Basic Officer Training and the Royal Military College of Canada (RMC); while there he completed his Infantry Officer training and earned a BSc in Chemistry. During his career as an infantry officer, Duncan deployed to Kandahar, Afgh in 2006 and Kabul, Afgh in 2011; Duncan was also an instructor of infantry officers as well as participating in multiple training exercises and support to domestic operations before his medical retirement in 2021. Since then, Duncan has earned an MA in Interdisciplinary Studies from Royal Roads University (RRU) (focused on Change Culture, Workplace Culture and Leadership) and he joined the Advisory Council of Veterans for the Chronic Pain Centre of Excellence for Canadian Veterans (CPCoE) all in 2022.\u00a0<\/p>\r\n Duncan is currently a Federal Public Service employee working with the Dept of National Defence in their Directorate of Pensions and Social Programs as a Project Manager enabling pension administration for Cdn Forces personnel. Through the CPCoE, Duncan has acted as a veteran advocate and while expanding his competence with SPOR and other knowledge mobilization practices, seeks to ensure that Cdn Forces Veterans have their place in the patient-engagement and patient experience research space.\u00a0<\/p>\r\n <\/p>\r\n Sujet :<\/strong> Perspectives des patients partenaires sur les obstacles et les facteurs favorables \u00e0 la mobilisation en recherche<\/p>\r\n Date :<\/strong> 5 f\u00e9vrier 2025<\/p>\r\n Heure :<\/strong> 2:30-4:00 PM PST \/ 5:30-7:00 PM EST \/ 10:30 PM – 12:00 AM UTC<\/p>\r\n Enregistrement <\/a> Alex Haagaard<\/strong> is a design researcher who specializes in disability-inclusive UX and digital service design. They earned their Master of Design from OCAD University in Toronto, studying knowledge gathering practices of emergency medical professionals for the purposes of healthcare information design. During this time, they also increasingly struggled with what one doctor derisively described as “a myriad of nonspecific symptoms,” which made publishing and networking as an early career researcher challenging. In 2016, they began to work full-time pursuing a diagnosis and medical care, an experience which they describe as the “world’s worst paying, least prestigious design research fellowship.” After two years of fighting to access care, they realized that if they wanted effective treatment, they would have to make it themselves. Researching the neurophysiology of histamine and identifying novel plant-based compounds, they successfully produced their own sleep cycle in 2018. Since then, they have been working with companies to develop and advocate for accessible design processes, including neglected modes of accessibility experienced by people with chronic pain and illness. They also work as a patient advocate and currently co-chair the Chronic Pain Network’s Knowledge Mobilization and Implementation Science committee.<\/p>\r\n Ressources recommand\u00e9es:\u00a0<\/strong><\/p>\r\n https:\/\/www.thephilosopher1923.org\/post\/being-in-the-room-privilege-elite-capture-and-epistemic-deference<\/a>\u00a0<\/p>\r\n https:\/\/academic.oup.com\/ije\/article\/38\/3\/622\/687401?login=false<\/a>\u00a0<\/p>\r\n https:\/\/www.vam.ac.uk\/blog\/projects\/the-sick-person-rejects-their-disappearance<\/a>\u00a0<\/p>\r\n Francine Buchanan<\/strong> is the Senior Manager, Patient, Family & Community Engagement at The Hospital for Sick Children (Ontario, Canada)\u202fand the Ontario Child Health Support Unit (OCHSU). In this role, Francine supports a Patient-Centred Health Care philosophy by ensuring patients and families can partner with the system to co-create a future for child health care that reflects their lived experiences. Francine’s goal is to ensure patient, family and community voices are key drivers for change in healthcare.<\/p>\r\n Francine Buchanan met \u00e0 profit tout un \u00e9ventail de comp\u00e9tences et d\u2019exp\u00e9rience dans le cadre de son travail en tant que m\u00e8re d\u2019un enfant avec des besoins de soins complexes, chercheuse en sant\u00e9, m\u00e8re partenaire de recherche et ancienne consultante strat\u00e9gique.<\/p>\r\n Dr. Francine Buchanan is the Senior Manager, Patient, Family & Community Engagement at The Hospital for Sick Children (Ontario, Canada)\u202fand the Ontario Child Health Support Unit (OCHSU). In this role, Dr. Buchanan supports a Patient-Centred Health Care philosophy by ensuring patients and families can partner with the healthcare system to co-create a future for children’s health care that reflects their lived experiences. Her goal is to ensure patient, family and community voices are key drivers for change in healthcare.\u00a0\u00a0<\/p>\r\n Conf\u00e9renci\u00e8re et conteuse convoit\u00e9e, Francine Buchanan pr\u00e9sente la valeur et les m\u00e9thodes d\u2019inclusion des perspectives de la patient\u00e8le et des familles en ce qui concerne la conception des syst\u00e8mes de sant\u00e9 et la recherche. Sa recherche et son enseignement portent principalement sur la mobilisation de la patient\u00e8le, la prise de d\u00e9cisions collective, la conception conjointe ainsi que les m\u00e9thodes de recherche ax\u00e9es sur les patients. Francine Buchanan apporte dans son travail un riche bagage de comp\u00e9tences et d\u2019exp\u00e9rience dans diff\u00e9rents milieux, notamment en tant que m\u00e8re d\u2019un enfant avec des besoins de soins de sant\u00e9 complexes, chercheuse en sant\u00e9, m\u00e8re partenaire de recherche et ancienne consultante strat\u00e9gique. Elle d\u00e9tient un baccalaur\u00e9at \u00e8s arts sp\u00e9cialis\u00e9 en anglais et en philosophie de l\u2019Universit\u00e9 McMaster, une ma\u00eetrise en biblioth\u00e9conomie et sciences de l\u2019information de l\u2019Universit\u00e9 Western Ontario ainsi qu\u2019un doctorat en recherche en services de sant\u00e9 de l\u2019Institute of Health Policy, Management and Evaluation (IHPME) de l\u2019Universit\u00e9 de Toronto, o\u00f9 elle occupe un poste de professeure adjointe.\u00a0<\/p>\r\n Linda Niksic<\/strong> is dedicated to improving the lives of individuals and building capacity in organizations, to be purposeful, inclusive by design, user centric and high performing. With over 20 years of experience in federal public service and in non-profit, municipal government, private and academic sectors, Linda’s leadership and experience living with muscular dystrophy, has led to sustainable results improving our community. This includes public relations work to help save Ottawa’s historic Aberdeen Pavilion from demolition, to leading a Youth Safety Audit in Ottawa’s Chinatown where young women requested a bus stop relocation from in front of a pool hall, to in front of a drug store, where they would feel safer waiting for their bus. Linda was also listed by the principal of Ottawa’s St. Anthony’s School at its 100-year celebration as one of the people who made a difference for St. Anthony School, 15 years after she worked at the school as a Community Developer. Linda has also interviewed Canadians across Canada who are homeless, living on the streets or living in overcrowded and unsafe conditions, and she has used their stories and insights to further policy development, research, and evaluation in the federal government.<\/p>\r\n Chercheur et d\u00e9fenseur, Jim Mann<\/strong> a re\u00e7u un diagnostic d\u2019Alzheimer pr\u00e9coce \u00e0 58 ans.\u202f Depuis, la technologie, la mobilisation significative et \u00e9thique et la stigmatisation des personnes atteintes de d\u00e9mence sont au c\u0153ur de son travail. Il a r\u00e9dig\u00e9 ou cor\u00e9dig\u00e9 58 articles \u00e9valu\u00e9s par les pairs et continue d\u2019agir \u00e0 titre de mentor pour des chercheurs en d\u00e9but de carri\u00e8re et des \u00e9tudiants, leur offrant ainsi un point de vue important. La Ville de Vancouver raconte son histoire dans cette vid\u00e9o :\u202f\u202fwww.youtube.com\/watch?v=Lzd2aYpuKdk&feature=youtu.be<\/a><\/p>\r\n Jim is a member of the Federal Ministerial Advisory Board on Dementia where he contributed to the development of Canada’s national dementia strategy entitled A Dementia Strategy for Canada ~ Together We Aspire, and a member of the CIHR Advisory Board for the Institute of Aging. He is also an Advisory Council member for Research Ethics BC, a board member with the Alzheimer Society of B.C., and a Research Management Committee member of AGE-WELL. Jim is a peer reviewer for the World Health Organization’s (WHO) Global Dementia Observatory (GDO) Knowledge Exchange Platform.\u00a0<\/p>\r\n In 2020, Jim was awarded an honorary Doctor of Laws degree (LL.D.) from UBC for his work “countering negative stereotypes and promoting an inclusive society in which persons with dementia can make an active and meaningful contribution.”\u00a0\u00a0<\/p>\r\n Sujet :<\/strong> Diff\u00e9rentes possibilit\u00e9s de s\u2019impliquer comme patient partenaire<\/p>\r\n Date :<\/strong> Oct 8, 2024<\/p>\r\n Heure :<\/strong> 3:00 PT \/ 6:00 pm ET \/ 10:00 pm UTC<\/p>\r\n Enregistrement <\/a> Patiente conseill\u00e8re et auditrice \u00e0 la retraite, Deb Baranec<\/strong> a souffert d\u2019arthrose du genou pendant plus de 35 ans, ce qui l\u2019a contrainte \u00e0 subir plusieurs interventions chirurgicales et \u00e0 porter cinq diff\u00e9rentes orth\u00e8ses avant de b\u00e9n\u00e9ficier d\u2019une arthroplastie totale du genou gauche en 2010, puis du genou droit en 2015. Sa mobilit\u00e9 retrouv\u00e9e, elle a d\u00e9cid\u00e9 d\u2019am\u00e9liorer son \u00e9tat de sant\u00e9 en perdant pr\u00e8s de 190 livres.<\/p>\r\n La sant\u00e9 des os et des articulations est une cause dont Deb est devenue porte-parole, s\u2019investissant notamment dans le R\u00e9seau clinique strat\u00e9gique pour la sant\u00e9 des os et des articulations des Services de sant\u00e9 de l\u2019Alberta, par exemple dans le cadre d\u2019une intervention lors d\u2019un atelier sur l\u2019ob\u00e9sit\u00e9 et l\u2019arthrose auquel elle participait. Elle a aussi contribu\u00e9 \u00e0 la phase initiale d\u2019une \u00e9tude sur l\u2019incidence de l\u2019ob\u00e9sit\u00e9 sur la d\u00e9marche apr\u00e8s une arthroplastie totale du genou et a collabor\u00e9, en tant que repr\u00e9sentante des consommateurs, \u00e0 une enqu\u00eate sur les effets des suppl\u00e9ments pr\u00e9biotiques sur l\u2019inflammation chronique chez les personnes ob\u00e8ses atteintes d\u2019arthrose du genou. Elle a par ailleurs parl\u00e9 de son cheminement vers le mieux-\u00eatre \u00e0 des \u00e9tudiants de troisi\u00e8me ann\u00e9e en m\u00e9decine et prononce des discours de motivation \u00e0 la client\u00e8le de Weight Watchers lorsqu\u2019elle y est invit\u00e9e.<\/p>\r\n Deb currently has an ongoing advisory role to a University of Calgary research group for a new tri-compartment brace that will be going into pre-clinical trials later in 2020.\u00a0 Additionally she is working as a patient advisor with the University of Alberta on a research study “Coping with COVID 19: Impact of Delayed Elective Surgeries – Mental Health & Substance Use Needs and Delivery.<\/p>\r\n Deb is a PERA (Patient Engagement Research Ambassador) with CIHR\/IMHA, and Patient Partner providing advice on learning modules for Clinical Trials Training Programs – CANTRAIN, promoting patient participation and engagement through clinical trials training.<\/p>\r\n Tucker Bottomley<\/strong> est un homme transgenre de la c\u00f4te Est dans la jeune trentaine atteint de polyarthrite rhumato\u00efde, d\u2019un TDAH, d\u2019hypothyro\u00efdie et de plusieurs autres comorbidit\u00e9s. \u00c0 22 ans, il a re\u00e7u son diagnostic de polyarthrite rhumato\u00efde, mais a attendu huit ans pour recevoir un traitement. B\u00e9n\u00e9ficiaire de prestations d\u2019invalidit\u00e9, il a pu produire de la musique et jouer dans plusieurs groupes en tourn\u00e9e au pays jusqu\u2019\u00e0 ce que son handicap devienne trop important. Depuis 2018, il est copropri\u00e9taire et g\u00e9rant d\u2019un salon de tatouage queer.<\/p>\r\n Tucker Bottomley participe \u00e0 un groupe de recherche de patients partenaires sur l\u2019anesth\u00e9sie depuis 2019 et a co-anim\u00e9 ces deux derni\u00e8res ann\u00e9es un atelier sur l\u2019inclusivit\u00e9 au Coll\u00e8ge de pharmacie de l\u2019Universit\u00e9 Dalhousie. En janvier 2024, il s\u2019est joint \u00e0 un nouveau groupe de patients partenaires de l\u2019Institut de g\u00e9n\u00e9tique et, r\u00e9cemment, a particip\u00e9 \u00e0 un panel de patients partenaires \u00e0 l\u2019Universit\u00e9 Dalhousie dans le cadre d\u2019un atelier sur l\u2019engagement de la patient\u00e8le. Tucker Bottomley continue d\u2019offrir un espace s\u00fbr aux personnes queers et marginalis\u00e9es dans le secteur du tatouage dans sa ville natale d\u2019Halifax, en Nouvelle-\u00c9cosse.\u00a0<\/p>\r\n Beth<\/strong> est physioth\u00e9rapeute et travaille en gestion de la qualit\u00e9 et des risques en soins de longue dur\u00e9e. Survivante d\u2019un r\u00e9cent cancer du sein, Beth compose avec les s\u00e9quelles musculosquelettiques de la radiation et de multiples chirurgies. Forte de ses 18 ans d\u2019exp\u00e9rience comme physioth\u00e9rapeute de premi\u00e8re ligne en soins aigus, elle poss\u00e8de une expertise \u00e0 la fois professionnelle et personnelle sur la mani\u00e8re dont les limites physiques et la douleur peuvent affecter la qualit\u00e9 de vie. Beth est fi\u00e8re d\u2019int\u00e9grer le point de vue de la patient\u00e8le dans son travail de sensibilisation, particuli\u00e8rement dans les domaines de la recherche et de la conception de syst\u00e8mes. En plus de son r\u00f4le d\u2019ambassadrice de la recherche ax\u00e9e sur le patient, Beth si\u00e8ge au conseil d\u2019administration du Arnprior District Health et est vice-pr\u00e9sidente du conseil consultatif des patients et des familles pour l\u2019Institut ontarien de recherche sur le cancer.<\/p>\r\n Dr. Homira Osman<\/strong> est vice-pr\u00e9sidente, Recherche et politiques publiques pour Dystrophie musculaire Canada. Elle poss\u00e8de une formation en audiologie clinique, en recherche en neurosciences et en application des connaissances. Le travail de Mme Osman consiste \u00e0 assumer des responsabilit\u00e9s g\u00e9n\u00e9rales strat\u00e9giques et op\u00e9rationnelles pour tous les aspects de la recherche, l\u2019application des connaissances, les relations cliniques et la sensibilisation au sein de DMC. Membre du R\u00e9seau canadien sur les maladies neuromusculaires (NMD4C), Homira s\u2019occupe de l\u2019implication de la patient\u00e8le et contribue \u00e0 toutes les sph\u00e8res du travail.<\/p>\r\n Sujet :<\/strong> Pourquoi devenir un patient partenaire en recherche<\/p>\r\n Date :<\/strong> 9 mai 2024<\/p>\r\n Heure :<\/strong> 1:00 pm – 2:15 pm PT \/ 4:00 pm – 5:15 pm ET \/ 8:00 pm – 9:15 pm UTC<\/p>\r\n Enregistrement <\/a> Motiv\u00e9 par un diagnostic inattendu d\u2019ost\u00e9oporose, Larry milite avec d\u00e9termination pour des am\u00e9liorations dans la compr\u00e9hension et la prise en charge de l\u2019ost\u00e9oporose au Canada. Apr\u00e8s sa retraite en 2006 d\u2019une carri\u00e8re de 35 ans au gouvernement f\u00e9d\u00e9ral, il a imm\u00e9diatement entam\u00e9 sa deuxi\u00e8me carri\u00e8re en tant que b\u00e9n\u00e9vole, puisant dans son exp\u00e9rience v\u00e9cue pour participer \u00e0 des efforts visant \u00e0 faire conna\u00eetre les programmes relatifs \u00e0 l\u2019ost\u00e9oporose, \u00e0 mobiliser des fonds et \u00e0 militer pour ceux-ci, et plus g\u00e9n\u00e9ralement \u00e0 les soutenir.<\/p>\r\n Larry spent 17 years on the Executive Committee of the Canadian Osteoporosis Patient Network (COPN) of Osteoporosis Canada (OC). His many roles included COPN Chair, member of OC’s Board of Directors and patient partner on the steering committee for the 2023 update of the Guideline for Osteoporosis. In 2013 he led the creation of the Osteoporosis Patient Bill of Rights, developed by patients, for patients. He also led the creation of Bones ‘n’ Beer, a unique and successful series of events to raise awareness of men’s bone health.<\/p>\r\n Aujourd\u2019hui un patient partenaire aguerri, Larry continue d\u2019apporter le point de vue d\u2019un homme vivant avec l\u2019ost\u00e9oporose dans de nombreuses initiatives de recherche.<\/p>\r\n Therese brings her lived experiences to many different areas of research and healthcare. Living with pain and arthritis since her mid-teens, she is currently a volunteer with the Canadian Arthritis Patient Alliance as a Steering Committee member and is actively involved in CreakyJoints’ Canada-based efforts. She is a patient partner with a number of different research projects and initiatives including the Canadian Institutes of Health Research’s Strategy for Patient-Oriented Research funded Chronic Pain Network, a project funded by the Social Sciences and Humanities Research Council called “Toward democratization of health: a sociological exploration of patient engagement in pain research (PEPR),” and provides her lived perspectives on the Canadian Pain Society’s Equity, Diversity and Inclusion Committee.<\/p>\r\n Ses exp\u00e9riences de vie avec la douleur et l\u2019arthrite l\u2019ont amen\u00e9e \u00e0 aider les gens \u00e0 comprendre et \u00e0 voir comment le traitement de la douleur n\u2019atteint pas toujours les personnes qui en ont le plus besoin (comme celles qui sont marginalis\u00e9es, celles qui vivent dans la pauvret\u00e9 et les femmes). Ses propres ant\u00e9c\u00e9dents de d\u00e9pendance active et de probl\u00e8mes de sant\u00e9 mentale non trait\u00e9s ne l\u2019ont rendue que trop consciente de la stigmatisation, du jugement et des obstacles que rencontrent les gens qui veulent acc\u00e9der \u00e0 un traitement appropri\u00e9 de la douleur. Comme beaucoup de gens qui ont une exp\u00e9rience v\u00e9cue, Therese apporte son point de vue dans l\u2019espoir d\u2019en aider d\u2019autres.<\/p>\r\n Anna Samson (iel\/elle) est une personne allosexuelle, d\u2019origine desi en situation de handicap visant en p\u00e9riph\u00e9rie de Toronto (Canada). Iel se consacre \u00e0 l\u2019\u00e9criture et \u00e0 la po\u00e9sie, et milite pour les causes de la sant\u00e9 mentale et des personnes en situation de handicap. Atteinte de spondylarthrite ankylosante, de fibromyalgie et de maladies mentales, ses sympt\u00f4mes sont apparus \u00e0 l\u2019enfance et se sont aggrav\u00e9s \u00e0 l\u2019adolescence. Anna se d\u00e9place maintenant \u00e0 l\u2019aide d\u2019une canne, et souvent d\u2019un d\u00e9ambulateur. Iel a un baccalaur\u00e9at \u00e8s arts en anglais et utilise ses habilet\u00e9s d\u2019\u00e9criture et de communication pour cr\u00e9er du contenu sur ses affections et leurs effets sur sa vie. Iel a \u00e0 c\u0153ur de mettre \u00e0 profit son v\u00e9cu exp\u00e9rientiel intersectionnel pour sensibiliser les gens aux maladies chroniques, aux handicaps et aux probl\u00e8mes de sant\u00e9 mentale, ainsi qu\u2019\u00e0 la participation des patients \u00e0 la recherche. Vous pouvez lea suivre sur les m\u00e9dias sociaux : @DisabilityWithAnna.<\/p>\r\n Kimberly Strain vit en Colombie-Britannique (Canada), et est patiente partenaire dans diverses initiatives depuis 2012, notamment comme membre de comit\u00e9s, patiente partenaire en recherche, membre du Patient Voices Network et coauteure des chartes Patients Included. Elle si\u00e8ge aussi au conseil d\u2019administration de l\u2019Institut pour la s\u00e9curit\u00e9 des m\u00e9dicaments aux patients du Canada et a r\u00e9cemment \u00e9t\u00e9 copr\u00e9sidente du comit\u00e9 consultatif de patients et proches aidants de Pour la douleur chez les enfants (SKIP). Dans ses temps libres, Kimberly se passionne pour la photographie et les arts.<\/p>\r\n Sujet :<\/strong> D\u00e9mystifier le processus de recherche du point de vue de la patient\u00e8le partenaire<\/p>\r\n Date :<\/strong> 21 mars 2024<\/p>\r\n Heure :<\/strong> 2:00 pm – 3:15 pm PT \/ 5:00 pm – 6:15 pm ET \/ 10:00 pm – 11:15 pm UTC<\/p>\r\n Enregistrement <\/a> Ardent d\u00e9fenseur<\/strong> is an active advocate for dementia, caregiving, aging, and research communities.\u00a0 Being a caregiver to his father who lived with Alzheimer’s for 10+ years to age in place at home until January 2018, Ron utilized technology, community, and access to research to support his family’s life to live well and as best as possible. In recent years, he has been called upon to do presentations across Canada and Internationally for Alzheimer’s Societies, communities, police, and researchers to share his knowledge on living safely with dementia, caregiving strategies, technology innovation in health care, and patient engagement with research and industry.<\/p>\r\n Ron copr\u00e9side le AGE-WELL’s Older Adult and Caregiver Advisory Committee<\/a><\/strong> et a re\u00e7u la bourse honorifique AGE-WELL en 2020<\/a>. Il est conseiller et pr\u00e9sentateur pour des groupes comme des soci\u00e9t\u00e9s de l\u2019Alzheimer et de la d\u00e9mence au Canada, accompagnateur pour\u00a0 Excellence en sant\u00e9 Canada<\/a><\/strong>, membre conseiller de la patient\u00e8le et des familles \u00e0 la\u00a0 Toronto Dementia Research Alliance<\/a><\/strong>membre du conseil d\u2019administration de l\u2019 Ontario Strategy in Patient-Oriented Research Unit<\/a><\/strong> (l\u2019unit\u00e9 provinciale de soutien \u00e0 la Strat\u00e9gie de recherche ax\u00e9e sur le patient [SRAP]), et membre de nombreuses autres organisations.<\/p>\r\n Mary Beaucage<\/strong> est Anishnaabe de la Premi\u00e8re Nation de Nipissing, laquelle fait partie de la Nation anishinabek sur le territoire vis\u00e9 par le trait\u00e9 Robinson-Huron. Au cours de sa carri\u00e8re en gestion de commerces de d\u00e9tail, Mary a parfait ses comp\u00e9tences en embauche, en encadrement et en planification de la succession en plus d\u2019ouvrir de nouveaux magasins et d\u2019analyser des tendances de march\u00e9 et d\u2019affaires. C\u2019est une conteuse captivante qui sait s\u2019ouvrir avec vuln\u00e9rabilit\u00e9 et confiance en l\u2019autre pour confier son histoire.<\/p>\r\n Mary a le diab\u00e8te de type 2; elle a re\u00e7u un diagnostic de n\u00e9phropathie terminale en 2013, ann\u00e9e o\u00f9 elle a commenc\u00e9 la dialyse. En mars 2015, elle a re\u00e7u un rein de sa cousine Janice qui habite au Manitoba, et elle est maintenant en attente d\u2019une deuxi\u00e8me transplantation. Mary s\u2019est montr\u00e9 une patiente partenaire de recherche, une conseill\u00e8re et une d\u00e9fenseure active, elle qui depuis 2016 endosse des r\u00f4les dans le r\u00e9seau Can-SOLVE CKD, au Programme de recherche en don et transplantation du Canada, dans le R\u00e9seau r\u00e9nal de l\u2019Ontario, \u00e0 l\u2019Association nationale autochtone du diab\u00e8te, et \u00e0 Sant\u00e9 Ontario.<\/p>\r\n Trinity Lowthian<\/strong> termine actuellement un baccalaur\u00e9at sp\u00e9cialis\u00e9 en sciences des aliments et de la nutrition \u00e0 l\u2019Universit\u00e9 d\u2019Ottawa; elle obtiendra son dipl\u00f4me en 2024 et deviendra une di\u00e9t\u00e9ticienne professionnelle. Elle fait partie du contingent d\u2019escrime en fauteuil roulant d\u2019\u00c9quipe Canada et comp\u00e9titionne \u00e0 l\u2019international.<\/p>\r\n Forte de plusieurs ann\u00e9es d\u2019exp\u00e9rience dans la recherche et la participation de la patient\u00e8le, elle assume avec une voix forte son nouveau r\u00f4le d\u2019ambassadrice de la recherche ax\u00e9e sur le patient \u00e0 l\u2019IALA. Membre du comit\u00e9 consultatif des jeunes de C4T (Canadian Collaborative for Childhood Cannabinoids Therapeutics), Trinity a soutenu l\u2019importance d\u2019impliquer la patient\u00e8le dans les recherches dans ses allocutions lors de conf\u00e9rences internationales et a particip\u00e9 \u00e0 la r\u00e9daction de plusieurs articles de revues scientifiques ainsi qu\u2019\u00e0 l\u2019\u00e9laboration de m\u00e9thodologies d\u2019\u00e9tudes. Elle a \u00e9galement \u00e9t\u00e9 stagiaire \u00e9tudiante \u00e0 l\u2019Institut de recherche de l\u2019H\u00f4pital d\u2019Ottawa, o\u00f9 elle a travaill\u00e9 avec des patients partenaires dans l\u2019\u00e9laboration d\u2019ensembles de r\u00e9sultats de base pour des \u00e9tudes sur les thromboembolies veineuses (caillots sanguins). Dans son nouveau r\u00f4le d\u2019ambassadrice, elle est enthousiaste \u00e0 l\u2019id\u00e9e de mettre \u00e0 profit son exp\u00e9rience personnelle de la sant\u00e9 musculosquelettique pour continuer de se porter \u00e0 la d\u00e9fense des enjeux qui comptent pour la patient\u00e8le.<\/p>\r\n Ellen Wang<\/strong> est une \u00e9tudiante au programme de ma\u00eetrise et de doctorat combin\u00e9s en physioth\u00e9rapie \u00e0 l\u2019Universit\u00e9 de la Colombie-Britannique. Elle est supervis\u00e9e par Linda Li, Ph. D. Ellen est \u00e9galement coordonnatrice \u00e0 Arthritis Consumer Experts, une organisation de d\u00e9fense de la patient\u00e8le, et est elle-m\u00eame une patiente. Ses travaux actuels sont au carrefour de l\u2019\u00e9quit\u00e9 en sant\u00e9 et de la participation des patients. Grosso modo, son travail consiste \u00e0 trouver les meilleures strat\u00e9gies pour rejoindre et collaborer avec diverses communaut\u00e9s et divers groupes mal desservis en recherche sur la sant\u00e9. Lorsqu\u2019elle n\u2019est pas plong\u00e9e dans ses travaux, Ellen est une femme active, m\u00e9lomane et gastronome.<\/p>\r\n <\/p>\r\n![\"Dawn.Barker\"](\"https:\/\/pxphub.org\/wp-content\/uploads\/2025\/04\/Dawn.Barker.jpeg\" "\\"Dawn.Barker\\"")
<\/p>\r\nDawn Barker<\/h2>\r\n
![\"Trudy.Flynn](\"https:\/\/pxphub.org\/wp-content\/uploads\/2025\/04\/Trudy.Flynn-2.jpg\" "\\"Trudy.Flynn")
<\/p>\r\nTrudy Flynn<\/h2>\r\n
![\"Sue.McKenzie\"](\"https:\/\/pxphub.org\/wp-content\/uploads\/2025\/04\/Sue.McKenzie.png\" "\\"Sue.McKenzie\\"")
<\/p>\r\nSusan McKenzie<\/h2>\r\n
En savoir plus<\/h5>\r\n
![\"Duncan\"](\"https:\/\/pxphub.org\/wp-content\/uploads\/2025\/04\/Duncan-e1744670973948.jpg\" "\\"Duncan\\"")
<\/p>\r\nDuncan Redburn<\/h2>\r\n
En savoir plus<\/h5>\r\n
Webinaire 4 (\u00e9v\u00e9nement pass\u00e9)<\/h2>\r\n
![\"Alex](\"https:\/\/pxphub.org\/wp-content\/uploads\/2025\/01\/AHaagaard-1-e1736378001129.jpg\" "\\"AHaagaard\\"")
<\/p>\r\nAlex Haagaard<\/h2>\r\n
En savoir plus<\/h5>\r\n
![\"Francine](\"https:\/\/pxphub.org\/wp-content\/uploads\/2025\/01\/Screenshot-2024-12-17-095059.png\" "\\"Screenshot")
<\/p>\r\nFrancine Buchanan<\/h2>\r\n
En savoir plus<\/h5>\r\n
![\"Linda](\"https:\/\/pxphub.org\/wp-content\/uploads\/2025\/01\/Linda-N.jpg\" "\\"Linda")
<\/p>\r\nLinda Niksic<\/h2>\r\n
![\"Jim](\"https:\/\/pxphub.org\/wp-content\/uploads\/2025\/01\/Jim-Mann-1.png\" "\\"Jim")
<\/p>\r\nJim Mann<\/h2>\r\n
En savoir plus<\/h5>\r\n
Webinaire 3 (\u00e9v\u00e9nement pass\u00e9)<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/06\/Deb-B.jpg\" "\\"Deb")
<\/p>\r\nDeb Baranec\u00a0<\/h2>\r\n
En savoir plus<\/h5>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/07\/TBottomley-e1720116461917.jpeg\" "\\"TBottomley\\"")
<\/p>\r\nTucker Bottomley\u00a0<\/h2>\r\n
En savoir plus<\/h5>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/06\/Beth-C.jpg\" "\\"Beth")
<\/p>\r\nBeth Ciavaglia\u00a0<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/06\/Homira_Osman.png\" "\\"Homira_Osman\\"")
<\/p>\r\nHomira Osman<\/h2>\r\n
Webinaire 2 (\u00e9v\u00e9nement pass\u00e9)<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/04\/LFunnell.png\" "\\"LFunnell\\"")
<\/p>\r\nLarry Funnell<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/04\/TLane.jpg\" "\\"TLane\\"")
<\/p>\r\nTherese Lane<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2023\/08\/Anna.Samson-scaled.jpg\" "\\"Anna.Samson\\"")
<\/p>\r\nAnna Samson<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/04\/KStrain-scaled.jpg\" "\\"KStrain\\"")
<\/p>\r\nKimberly Strain<\/h2>\r\n
Webinaire 1 (\u00e9v\u00e9nement pass\u00e9)<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/02\/Ron-Beleno.jpg\" "\\"Ardent")
<\/p>\r\nArdent d\u00e9fenseur<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/02\/Mary-Beaucage-scaled.jpeg\" "\\"Mary")
<\/p>\r\nMary Beaucage<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/02\/trinity_lowthian.jpg\" "\\"trinity_lowthian\\"")
<\/p>\r\nTrinity Lowthian<\/h2>\r\n
![\"Photo](\"https:\/\/pxphub.org\/wp-content\/uploads\/2024\/02\/Ellen-Wang.jpg\" "\\"Ellen")
<\/p>\r\nEllen Wang<\/h2>\r\n
Autres renseignements<\/h2>\r\n