{"id":2247,"date":"2023-06-28T14:11:00","date_gmt":"2023-06-28T21:11:00","guid":{"rendered":"https:\/\/pxphub.org\/?p=2247"},"modified":"2023-07-14T16:05:59","modified_gmt":"2023-07-14T23:05:59","slug":"engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved","status":"publish","type":"post","link":"https:\/\/pxphub.org\/fr\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/","title":{"rendered":"Participation des patients partenaires \u00e0 l\u2019\u00e9valuation par les pairs : conseils pour toutes les parties"},"content":{"rendered":"<p class=\"translation-block\">Tel que publi\u00e9 pr\u00e9c\u00e9demment sur le blog de l'IALA <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2021\/08\/10\/co-creating-through-social-media-crowdsourcing\/\" target=\"_blank\" rel=\"noopener\" aria-label=\"As previously published on the IMHA blog here - opens in new tab\">ici<\/a><\/p>\n\t<p class=\"translation-block\">Dawn Richards, Deb Baranec, Eileen Davidson et Trudy Flynn<\/p>\n\t<h2>Qu\u2019est-ce que l\u2019\u00e9valuation par les pairs?<\/h2>\n<p>The peer review process can be strange and slightly confusing if you&#8217;re not in academia or new to the process. At its simplest, peer review is a process used by an organization that funds research to review grant applications that have been submitted to be considered for funding. Funding organizations include the Canadian Institutes of Health Research, a health or other charity, and research foundations. While the exact process may be different depending on the organization, generally grant applications are &#8216;assigned&#8217; to people who are called &#8216;reviewers&#8217;. Organizations will select reviewers who have the experience or expertise to assess the applications.<\/p>\n<p>Chaque demande est g\u00e9n\u00e9ralement confi\u00e9e \u00e0 un groupe d\u2019\u00e9valuateurs qui la lit et l\u2019examine en tenant compte d\u2019un ensemble de crit\u00e8res fond\u00e9s sur les objectifs du concours en question. Les \u00e9valuateurs se r\u00e9unissent ensuite en personne ou virtuellement pour pr\u00e9senter leurs constatations et d\u00e9battre des cotes \u00e0 attribuer \u00e0 la demande. Les \u00e9valuateurs peuvent par la suite d\u00e9cider de modifier leur \u00e9valuation en fonction des discussions qui ont lieu au cours de la r\u00e9union.<\/p>\n<p><em>*<\/em>\u00a0<em> Peer Review Overview &#8211; <\/em><a href=\"https:\/\/cihr-irsc.gc.ca\/e\/39380.html\"><em>https:\/\/cihr-irsc.gc.ca\/e\/39380.html<\/em><\/a><\/p>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/pxphub.org\/wp-content\/uploads\/2023\/06\/Network-visual-e1687973428575-1024x358-1.png\" alt=\"Network visual\" itemprop=\"image\" height=\"358\" width=\"1024\" title=\"Network-visual-e1687973428575-1024x358\" onerror=\"this.style.display='none'\"  \/>\n\t<h2>Les patients partenaires comme pairs \u00e9valuateurs<\/h2>\n<p>Certains organismes font d\u00e9sormais appel \u00e0 des patients partenaires pour l\u2019\u00e9valuation par les pairs. Ce n\u2019est pas un hasard : l\u2019exp\u00e9rience et l\u2019expertise de ces derniers viennent compl\u00e9ter celles des chercheurs, des cliniciens et des autres personnes (issues par exemple d\u2019organisations communautaires et d\u2019organismes sans but lucratif) occupant normalement le r\u00f4le d\u2019\u00e9valuateur.<\/p>\n<p>Organizations may involve patient partners in different ways. Sometimes patient partners are asked to read and review only part of the grant application and sometimes they&#8217;re asked to review the grant application the same as any other reviewer. Patient partners are asked to bring all of their skills and experiences to the review which may include their patient perspective and for some it may also mean critiquing the proposed research. For many patient partners, peer review of grant applications is a new concept and a different way to be involved in research.<\/p>\n<p>\u00c9tant nous-m\u00eames pass\u00e9es par l\u00e0, nous avons d\u00e9cid\u00e9 de tirer parti de notre exp\u00e9rience pour donner quelques conseils non seulement aux patients partenaires, mais aussi aux gens et aux organismes qui font appel \u00e0 leurs services. Nous esp\u00e9rons ainsi \u00e9clairer toutes les parties afin d\u2019assurer le bon d\u00e9roulement du processus.<\/p>\n<p>Les tableaux ci-dessous sont structur\u00e9s en fonction des diff\u00e9rentes \u00e9tapes du processus d\u2019\u00e9valuation. Ils comportent une colonne indiquant ce que les patients partenaires pourraient juger utile de demander ou de savoir, ainsi qu\u2019une colonne destin\u00e9e \u00e0 aider les organismes et les responsables de l\u2019\u00e9valuation par les pairs \u00e0 d\u00e9terminer les renseignements \u00e0 communiquer aux patients partenaires.<\/p>\n<h2>\n\t\t   Tips on involving patient partners in peer review of grant applications &#8211; questions to ask and things to consider based on the time point in the process\n\t<\/h2>\n\t<p>Les PDF t\u00e9l\u00e9chargeables des tableaux ci-dessous sont disponibles ici :<\/p>\n\t\t\t\t<a href=\"https:\/\/pxphub.org\/wp-content\/uploads\/2023\/07\/English-PDF-Patient-Partners-FINAL.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/pxphub.org\/wp-content\/uploads\/2023\/07\/Patients-partenaires.png\" alt=\"Patients partenaires\" itemprop=\"image\" height=\"267\" width=\"386\" title=\"Patients partenaires\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n\t<p class=\"translation-block\">Patients partenaires <a href=\"https:\/\/pxphub.org\/wp-content\/uploads\/2023\/07\/English-PDF-Patient-Partners-FINAL.pdf\" target=\"_blank\" aria-label=\"Patient Partners download\" data-uw-rm-vglnk=\"\" data-uw-pdf-br=\"1\" data-uw-pdf-doc=\"\">ici<\/a>.<\/p>\n\t\t\t\t<a href=\"https:\/\/pxphub.org\/wp-content\/uploads\/2023\/07\/English-PDF-PeopleOrganizations-FINAL.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/pxphub.org\/wp-content\/uploads\/2023\/07\/Responsables-et-organismes.png\" alt=\"Responsables et organismes\" itemprop=\"image\" height=\"258\" width=\"440\" title=\"Responsables et organismes\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n\t<p class=\"translation-block\">Responsables et organismes <a href=\"https:\/\/pxphub.org\/wp-content\/uploads\/2023\/07\/English-PDF-PeopleOrganizations-FINAL.pdf\" target=\"_blank\" aria-label=\"People\/Organizations download\" data-uw-rm-vglnk=\"\" data-uw-pdf-br=\"1\" data-uw-pdf-doc=\"\">ici<\/a>.<\/p>\n<h2>\n\t\tAvant la r\u00e9union d\u2019\u00e9valuation par les pairs\n\t<\/h2>\n\t\t<ul>\n\t\t\t\t\t<li>\n\t\t\t\t<h4>Patients partenaires<\/h4>\n\t\t<ul>\n<li>Do I have the &#8216;right&#8217; lived experience for this (e.g., maybe I live with one condition and I&#8217;m being asked to review a grant application about another condition)? Do I feel comfortable with this?<\/li>\n<li>Ai-je le temps d\u2019occuper le r\u00f4le d\u2019\u00e9valuateur? Combien de temps dois-je m\u2019attendre \u00e0 y consacrer?<\/li>\n<li>Combien de demandes dois-je \u00e9valuer et combien de temps dois-je consacrer \u00e0 chacune d\u2019entre elles?<\/li>\n<li>Existe-t-il un mod\u00e8le d\u2019\u00e9valuation \u00e0 remplir pour chaque demande? Comment fonctionne l\u2019attribution des cotes?<\/li>\n<li>Dois-je lire et \u00e9valuer l\u2019ensemble de la demande ou seulement une partie?<\/li>\n<li>Is there an orientation session &#8211; how will the process be explained to me?<\/li>\n<li>Do I have a contact for one-on-one support if I have questions while I&#8217;m reviewing?<\/li>\n<li>Devrai-je utiliser certains outils technologiques pour soumettre mes \u00e9valuations? \u00c0 qui puis-je m\u2019adresser si je rencontre des difficult\u00e9s avec ces outils?<\/li>\n<li>Dois-je participer \u00e0 une r\u00e9union d\u2019\u00e9valuation par les pairs ou seulement soumettre mes \u00e9valuations? S\u2019il y a une r\u00e9union, aura-t-elle lieu virtuellement ou en personne? Si elle a lieu en personne, o\u00f9 se d\u00e9roulera-t-elle (et quelles seront les cons\u00e9quences pour moi)? Les frais \u00e0 engager pour y assister seront-ils rembours\u00e9s ou pay\u00e9s \u00e0 l\u2019avance?<\/li>\n<li>Quelle sera la dur\u00e9e de la r\u00e9union?<\/li>\n<li>Quel est le calendrier du processus dans son ensemble, depuis l\u2019attribution des demandes \u00e0 \u00e9valuer jusqu\u2019\u00e0 la r\u00e9union d\u2019\u00e9valuation par les pairs, en passant par les autres rencontres?<\/li>\n<li>Combien d\u2019autres patients partenaires participent \u00e0 l\u2019\u00e9valuation et combien de membres le comit\u00e9 d\u2019\u00e9valuation compte-t-il en tout?<\/li>\n<li>Les patients partenaires peuvent-ils communiquer les uns avec les autres avant la r\u00e9union pour se soutenir mutuellement? Dans le cas contraire, puis-je parler \u00e0 un patient partenaire qui a d\u00e9j\u00e0 effectu\u00e9 des \u00e9valuations et pourrait me conseiller de mani\u00e8re informelle?<\/li>\n<li>Existe-t-il un glossaire que je pourrais consulter si je rencontre certains termes que je ne connais pas?<\/li>\n<li>Mes \u00e9valuations sont-elles concises et constructives, et mes cotes (le cas \u00e9ch\u00e9ant) concordent-elles avec mes commentaires?<\/li>\n<li>Le processus est-il confidentiel? Dois-je signer un document \u00e0 ce propos?<\/li>\n<li>Has the competition&#8217;s approach to conflict of interest been explained to me (i.e., what do I do if I know the researcher or research team on an application that has been assigned to me?)?<\/li>\n<li>M\u2019offrira-t-on quelque chose \u00e0 boire et \u00e0 manger (que la r\u00e9union se d\u00e9roule en personne ou non)? \u00c0 qui puis-je m\u2019adresser si j\u2019ai des restrictions alimentaires?<\/li>\n<li>Si j\u2019ai besoin de services de garde, ces frais seront-ils rembours\u00e9s?<\/li>\n<li>Une r\u00e9tribution me sera-t-elle vers\u00e9e pour le temps, l\u2019\u00e9nergie et l\u2019expertise consacr\u00e9s \u00e0 l\u2019\u00e9valuation? Si oui, quel sera son montant? Quelles r\u00e9percussions aura-t-elle sur ma situation (si je re\u00e7ois des prestations d\u2019invalidit\u00e9 ou d\u2019autres prestations)?<\/li>\n<\/ul>\n\t\t\t<\/li>\n\t\t\t\t\t<li>\n\t\t\t\t<h4>Responsables et organismes<\/h4>\n\t\t<ul><li>Les patients partenaires que vous avez recrut\u00e9s permettent-ils d\u2019avoir des points de vue diff\u00e9rents?<\/li><li>Communiquerez-vous aux patients partenaires ce qu\u2019on attend d\u2019eux? Par exemple, devront-ils \u00e9valuer une demande dans sa totalit\u00e9 ou une partie seulement?<\/li><li>Will you host an orientation session with all patient partners so you can: review the entire process, including any templates or information about scoring; clearly explain the timeline for the process; provide an overview of any technology used; and, go over any logistics related to the meeting (e.g., how long it is, if it&#8217;s virtual or in-person, etc.); and so patient partners can ask questions and meet the chair of the peer review panel, etc.?<\/li><li>If the review meeting is in person, have you arranged for pre-payment of patient partner reviewer&#8217;s expenses related to travel? Will reimbursement be timely and can someone support filling out an expense report?<\/li><li>Have you taken into account all logistics related to food and drinks supplied (whether the meeting is virtual or not), and dietary restrictions? (e.g., for virtual meetings, having food delivered is appreciated if it&#8217;s possible)<\/li><li>Les frais de garde d\u2019enfants seront-ils rembours\u00e9s?<\/li><li>Pendant l\u2019\u00e9valuation, les patients partenaires pourront-ils discuter les uns avec les autres afin de se soutenir mutuellement? Votre organisation dispose-t-elle d\u2019un moyen permettant aux patients partenaires de se mentorer l\u2019un l\u2019autre?<\/li><li>Allez-vous simplifier au maximum le processus pour les patients partenaires?<\/li><li>Allez-vous d\u00e9signer une personne-ressource au sein de votre organisation qui sera en mesure de r\u00e9pondre aux questions des patients partenaires?<\/li><li>Existe-t-il un glossaire que les patients partenaires peuvent consulter s\u2019ils rencontrent certains termes qu\u2019ils ne connaissent pas?<\/li><li>Les patients partenaires savent-ils comment d\u00e9clarer un conflit d\u2019int\u00e9r\u00eats s\u2019ils connaissent les auteurs des demandes?<\/li><li>S\u2019il existe des documents relatifs \u00e0 la confidentialit\u00e9 de l\u2019\u00e9valuation, sont-ils r\u00e9dig\u00e9s dans un langage facile \u00e0 lire et \u00e0 comprendre et les expliquerez-vous aux patients partenaires?<\/li><li>Indiquerez-vous clairement si le versement d\u2019une r\u00e9tribution est pr\u00e9vu? Votre organisation fournira-t-elle des documents de nature fiscale \u00e0 cet \u00e9gard?<\/li><\/ul>\t\t\t\n\t\t\t<\/li>\n\t\t\t\t<\/ul>\n<h2>\n\t\tDurant la r\u00e9union d\u2019\u00e9valuation par les pairs\n\t<\/h2>\n\t\t<ul>\n\t\t\t\t\t<li>\n\t\t\t\t<h4>Patients partenaires<\/h4>\n\t\t<ul><li>Has the approach to the meeting and how it &#8216;works&#8217; been explained well to me?<\/li><li>Si la r\u00e9union d\u2019\u00e9valuation est virtuelle, faut-il que je laisse ma cam\u00e9ra allum\u00e9e durant toute la r\u00e9union?<\/li><li>Will I be asked to comment on applications that weren&#8217;t &#8216;assigned&#8217; to me?<\/li><li>\u00c0 quel moment serai-je invit\u00e9 \u00e0 faire part de mes commentaires?<\/li><li>Y aura-t-il des pauses pendant la r\u00e9union? Sont-elles suffisantes pour moi? Qu\u2019en est-il si je dois me d\u00e9placer pendant la r\u00e9union (virtuelle ou en personne)?<\/li><li>Si la r\u00e9union est virtuelle, quel sera l\u2019outil technologique utilis\u00e9? Que se passera-t-il si j\u2019ai besoin d\u2019aide?<\/li><li>Si je me trouve en situation de conflit d\u2019int\u00e9r\u00eats avec une demande faisant l\u2019objet d\u2019une discussion, que se passera-t-il?<\/li><\/ul>\t\t\t\n\t\t\t<\/li>\n\t\t\t\t\t<li>\n\t\t\t\t<h4>Responsables et organismes<\/h4>\n\t\t<ul><li>Have you explained how the meeting &#8216;works&#8217; to patient partners?<\/li><li>Has the meeting &#8216;decorum&#8217; been explained to everyone (e.g., if people need to move\/stretch between breaks, cameras being on\/off during virtual meetings)<\/li><\/ul>\t\t\t\n\t\t\t<\/li>\n\t\t\t\t<\/ul>\n<h2>\n\t\tApr\u00e8s la r\u00e9union d\u2019\u00e9valuation par les pairs\n\t<\/h2>\n\t\t<ul>\n\t\t\t\t\t<li>\n\t\t\t\t<h4>Patients partenaires<\/h4>\n\t\t<ul><li>Tous mes documents li\u00e9s aux \u00e9valuations ont-ils \u00e9t\u00e9 soumis?<\/li><li>Recevrai-je les notes ou le proc\u00e8s-verbal de la r\u00e9union et saurai-je quels projets ont \u00e9t\u00e9 financ\u00e9s?<\/li><li>Puis-je formuler des commentaires sur mon exp\u00e9rience? Quelle sera la m\u00e9thode utilis\u00e9e pour ce faire (p. ex. un sondage anonyme ou une r\u00e9union)? Me convient-elle?<\/li><li>Recevrai-je des commentaires sur mon travail afin que je puisse apprendre du processus?<\/li><li>Pourrai-je discuter de mon exp\u00e9rience avec d\u2019autres patients partenaires recrut\u00e9s comme \u00e9valuateurs par cet organisme?<\/li><li>Aimerais-je participer au processus d\u2019\u00e9valuation par les pairs de cet organisme de nouveau et, si oui, l\u2019ai-je indiqu\u00e9 \u00e0 ma personne-ressource?<\/li><li>Si je dois d\u00e9bourser de l\u2019argent pour couvrir des frais li\u00e9s \u00e0 la r\u00e9union, quand puis-je m\u2019attendre \u00e0 en recevoir le remboursement? Si le versement d\u2019une r\u00e9tribution est pr\u00e9vu, quand puis-je m\u2019attendre \u00e0 le recevoir?<\/li><\/ul>\t\t\t\n\t\t\t<\/li>\n\t\t\t\t\t<li>\n\t\t\t\t<h4>Responsables et organismes<\/h4>\n\t\t<ul><li>Avez-vous clairement indiqu\u00e9 que les notes ou le proc\u00e8s-verbal de la r\u00e9union seront remis aux \u00e9valuateurs et le moment auquel ils le seront?<\/li><li>Disposez-vous d\u2019un m\u00e9canisme de collecte des commentaires vous permettant de savoir comment le processus s\u2019est d\u00e9roul\u00e9 pour les patients partenaires (et ce processus convient-il \u00e9galement aux commentaires n\u00e9gatifs)? Avez-vous expliqu\u00e9 clairement la fa\u00e7on dont les commentaires seront utilis\u00e9s pour am\u00e9liorer l\u2019exp\u00e9rience des autres patients partenaires?<\/li><li>Pr\u00e9voyez-vous fournir aux patients partenaires des commentaires sur leur travail afin qu\u2019ils puissent tirer des le\u00e7ons de leur exp\u00e9rience?<\/li><li>Avez-vous demand\u00e9 aux patients partenaires qui ont particip\u00e9 \u00e0 la r\u00e9union s\u2019ils souhaiteraient revivre cette exp\u00e9rience? Seraient-ils pr\u00eats \u00e0 encadrer d\u2019autres patients partenaires (de mani\u00e8re officielle ou informelle)?<\/li><li>Avez-vous r\u00e9gl\u00e9 les questions du remboursement des d\u00e9penses en lien avec la r\u00e9union et du versement des r\u00e9tributions, le cas \u00e9ch\u00e9ant, afin d\u2019\u00e9viter les retards?<\/li><\/ul>\t\t\t\n\t\t\t<\/li>\n\t\t\t\t<\/ul>\n\t<p>Given that more organizations are starting to involve patient partners in this process, we hope this blog is helpful to explain what peer review of grant applications is (generally), and the types of questions\/items that need to be considered when fully integrating patient partners in peer review of grant applications. We believe that involving patient partners in peer review of grant applications can help lead to more relevant research being funded and done. We&#8217;ve been part of review meetings where patient partners have brought unique perspectives that other peer reviewers have not considered.<\/p>","protected":false},"excerpt":{"rendered":"<p>Par Dawn Richards, Deb Baranec, Eileen Davidson et Trudy Flynn<\/p>","protected":false},"author":2,"featured_media":2254,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[30],"tags":[],"class_list":["post-2247","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - 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