{"id":6270,"date":"2025-09-23T12:45:48","date_gmt":"2025-09-23T19:45:48","guid":{"rendered":"https:\/\/pxphub.org\/?p=6270"},"modified":"2025-12-01T13:34:49","modified_gmt":"2025-12-01T21:34:49","slug":"canadian-arthritis-summer-school-learnings","status":"publish","type":"post","link":"https:\/\/pxphub.org\/fr\/canadian-arthritis-summer-school-learnings\/","title":{"rendered":"Par des patients partenaires et des stagiaires, pour des patients partenaires et des stagiaires : retour sur l\u2019AECA 2025"},"content":{"rendered":"\r\n

Written by Amelia Choy, Nejat Hassen, Julie McKenna, Laurie Proulx, Min Xi, Hetty Mulhall, and Dawn Richards<\/em><\/p>\r\n

What is CASS?<\/a> Expand<\/i><\/a><\/p>\r\n

In-person conferences and meetings may be difficult for patient partners and trainees to access for a number of reasons. To address this, the Canadian Arthritis Summer School<\/a> (CASS) provided an opportunity for patient partners and trainees to co-create a virtual three-day event for other patient partners and trainees in Canada. This event aimed to bring individuals together to enhance their learning of arthritis research and other aspects of research important to them. This pilot summer school initiative represents an evolution of the online Canadian Arthritis Research Conference<\/a> and incorporates the co-lead and co-design approach of the PxP Conference.<\/a>\u00a0<\/p>\r\n

CASS Steering Committee across Canada:\u00a0<\/h3>\r\n

\"CASS<\/p>\r\n

The CASS Steering Committee<\/a>, comprised of members who identify as patient partners, trainees, or both, collaborated to design the summer school program. They developed and selected various session topics, including Indigenous engagement in research, physical activity and arthritis, day in the life of different roles in research, sex and gender in arthritis research, best practices in patient engagement in research, appraising journal articles and grant applications, Open Science, knowledge translation, and networking.\u00a0<\/p>\r\n

 <\/p>\r\n

CASS 2025 program:<\/h3>\r\n

\"Schedule<\/p>\r\n

In addition to developing the summer school program, some Steering Committee members had multiple roles, including as co-host, facilitator, and speaker<\/a>. Steering Committee members had the flexibility to choose their level of involvement in summer school, participating as much or as little as they desired.<\/p>\r\n

The Institute of Musculoskeletal Health and Arthritis (IMHA)<\/a> supported the Steering Committee’s efforts to develop the program, invite and coordinate speakers, promote attendance, host, and present at CASS.<\/p>\r\n

Q&A: CASS Steering Committee members and IMHA share their experiences<\/b><\/h2>\r\n

\"Nejat Nejat Hassen, CASS Steering Committee Member from Vancouver, BC \"Julie Julie McKenna, CASS Steering Committee Member from Regina, SK \"Laurie Laurie Proulx, CASS Steering Committee Member from Ottawa, ON \"Min Min Xi, CASS Steering Committee Member from Toronto, ON \"Hetty Hetty Mulhall, CASS Support Team from IMHA \"Dawn Dawn Richards, Patient Engagement Consultant with IMHA Why did you want to be a part of the Steering Committee?<\/a> Expand<\/i><\/a><\/p>\r\n

Nejat:<\/i> I was very excited to join the Steering Committee for several reasons. First, it was a wonderful opportunity to connect with other trainees and patient partners from across Canada. Second, I looked forward to developing new skills, such as conference and logistics planning. Lastly, I was eager to share my own experiences to help move the rheumatology field forward.<\/p>\r\n

Julie:<\/i> The opportunity to participate in a project where we could co-design a three-day virtual Canada-wide event was really interesting to me. I have worked as a patient partner on multiple research projects, and I was eager to gain insight into the experience of other patient partners and trainees. I had past experience with training opportunities and webinars offered by IMHA and knew they’d be a great group to work with.<\/p>\r\n

Laurie:<\/i> I really enjoy working with trainees – it’s an opportunity to get to know them early on in their careers and has the potential to influence their trajectory in research. It seems like a perfect time to collaborate with them as a patient partner with the hopes that they might continue to do so for years and decades to come.\u00a0<\/p>\r\n

Min:<\/i> As a PhD student, I’m passionate about bringing patient perspectives into my research. I saw CASS as a way to step outside the usual academic environment, collaborate with patient partners in a novel way, and deepen my understanding of patient engagement in research. I wanted to be part of the Steering Committee because it felt like a chance to create something new that didn’t exist before-a summer school co-designed by and for patient partners and trainees. I was curious about how we could take ideas from brainstorming to a finished program.<\/p>\r\n

What did you learn through being part of the Steering Committee? <\/a> Expand<\/i><\/a><\/p>\r\n

Nejat:<\/i> My favourite part was being on the panel about best practices for patient engagement, where I could share my own experiences from working in rheumatology research. I loved hearing the other panelists’ stories and reflecting on the ways our experiences-as researchers and patient partners-were both similar and different. It really reminded me that every experience is valuable, and that by sharing them, we can better understand patient needs, ask more relevant research questions, and find creative, equitable solutions. That richness of diverse perspectives is what makes the rheumatology field stronger and more innovative.<\/p>\r\n

Julie:<\/i> My favourite part was working with such a diverse group of people with different experiences in research. The IMHA folks were so supportive and really were the glue that held it all together. The learning opportunity, for me, was how to work with a mixed group over a longer planning cycle using only the online platform for meetings. The last months prior to the event went by very quickly, while the first months did seem to drag. All this was valuable learning about how to work with others in the online environment.<\/p>\r\n

Laurie:<\/i> I knew working with IMHA would be ‘easy’ without a lot of the additional labour I can experience with other teams and my expectations were met. Everything was well-planned, flexibility was the norm, and I spent a lot of time just listening to other Steering Committee members. I love how, even as patient partners, we bring such different, unique perspectives.<\/p>\r\n

Min:<\/i> My favourite part was watching our ideas for CASS take shape and grow stronger with every conversation. Each time patient partners and trainees added their perspectives, the program became richer and more layered. It was incredible to see those early brainstorming sessions transform into a full event, with every Steering Committee member contributing something unique from their own experience. I think that diversity of voices is exactly what made CASS feel so different-and so much more engaging-than a traditional research conference.<\/p>\r\n

What did you learn by supporting the Steering Committee?<\/a> Expand<\/i><\/a><\/p>\r\n

Dawn:<\/i> I learned new ways that people could be supported to contribute to co-creating the Summer School. I also learned about topics that both trainees and patient partners find interesting, which mostly weren’t specific to arthritis but more in how research is done and shared.<\/p>\r\n

Hetty:<\/i> Because the Steering Committee was representative of the target audience for the conference, they co-created a program that was much more innovative and engaging than we could have developed as an Institute team. I also learnt a lot through observing a team come together cohesively when traditional hierarchies have been dismantled.<\/p>\r\n

We have spoken about the Steering Committee members having learnings as the event leaders, co-hosts, speakers, facilitators, and also as attendees. What is something about your experience in having multiple roles in the summer school that you would like to share?<\/a> Expand<\/i><\/a><\/p>\r\n

Nejat:<\/i> As an attendee, I really enjoyed learning about the diverse research projects being shared. In my role as an event leader, I truly appreciated the teamwork and collaboration required to make everything run smoothly. And as a speaker, I gained valuable insights from my co-panelists that expanded my own understanding. Experiencing the summer school from these different angles helped me see how all the pieces come together, deepening my appreciation for everyone’s hard work. It was a rewarding experience that taught me a lot about growth, collaboration, and engagement!<\/p>\r\n

Julie:<\/i> I partnered with one of the trainees as co-host and facilitator for the first day of the summer school. It was a positive experience to work together to plan an approach that would create a welcoming and engaging environment for all attendees. I learned more about the trainee experience through that collaboration. I found that insight valuable and will take it with me on future research projects.<\/p>\r\n

Laurie:<\/i> I really liked working with the trainee as a co-host and getting right into the operational aspects of Day 3. I also enjoyed facilitating the Open Science session and tried my best to bring both trainee and patient partner perspectives to the planning of the session. It was great to hear from different research teams, including trainees, about their work and hearing how to work with Indigenous communities.<\/p>\r\n

Min: <\/i>Taking on multiple roles throughout the summer school gave me a front-row seat to the event’s many moving parts. Apart from co-designing CASS, I was also a co-host and an attendee at the event. As a co-host, I focused on creating an inclusive, safe space and sparking meaningful conversations-while also keeping an eye on the clock to keep things running smoothly. At the same time, stepping back as an attendee allowed me to soak up the content of the sessions without distractions (e.g., keeping track of time, facilitating discussions) and reflect on how the sessions connected my real-world experiences.<\/p>\r\n

Recommendations for future initiatives: If others want to try something similar, what would you like them to know?<\/b><\/h2>\r\n

If you’re an organization, try this:<\/a> Expand<\/i><\/a><\/p>\r\n

Dawn: <\/i>Keep an open mind and trust that the process and the people involved in the process will deliver really unique ideas that won’t necessarily result from a ‘typical’ approach to setting up an agenda. This type of process takes more time and intentionality – which I think are both really worth it.<\/p>\r\n

Hetty: <\/i>Be transparent about the resources that you have available to support the initiative and budget to offer an honorarium to patient partners. Ask the Steering Committee what other resources or supports they would find helpful and be honest about whether those are feasible. Aim to cede power to the committee.<\/p>\r\n

If you’re a trainee, try this: <\/a> Expand<\/i><\/a><\/p>\r\n

Nejat: <\/i>Don’t hesitate to step outside your comfort zone and try new things-you’ll learn so much, expand your research knowledge, and hopefully find inspiration that drives your current research program forward.<\/p>\r\n

Min: <\/i>Jump in early and don’t be shy about sharing your ideas. Your perspective is valuable, even if you’re new to event planning or patient engagement. Ask questions, share ideas, and be open to learning from patient partners-they’ll give you insights you won’t find in textbooks or research papers. The experience will build skills you can carry into both your academic work and future collaborations.<\/p>\r\n

If you’re a patient partner, try this:<\/a> Expand<\/i><\/a> Julie: <\/i>Put up your hand and volunteer! I guarantee you will learn a lot about how to work together online, stretch yourself, gain insights into the experience of others, and you will be supported throughout the process.
<\/i><\/b>
<\/i><\/b>Laurie: <\/i>Don’t feel intimidated. I don’t have any science training and I just try to go in with an open mind and collaborative spirit.<\/p>\r\n

This summer school initiative was unique and provided valuable insights for everyone involved. We encourage others to explore and engage in similar opportunities, as they can lead to meaningful learning experiences and connections.<\/p>\r\n

If you have any questions about CASS, please email imha-iala@cihr-irsc.gc.ca<\/a>\u00a0<\/p>\r\n

How to cite this blog<\/b><\/h2>\r\n
APA<\/h5>\r\n

Choy, A., Hassen, N., McKenna, J., Proulx, L., Xi, M., Mulhall, H., & Richards, D. P. (2025, September 23). By patient partners and trainees, and for patient partners and trainees: Sharing the CASS experience<\/em>. PxP. https:\/\/pxphub.org\/canadian-arthritis-summer-school-learnings\/<\/a><\/p>\r\n

Vancouver<\/h5>\r\n

Choy A, Hassen N, McKenna J, Proulx L, Xi M, Mulhall H, Richards D.P. By patient partners and trainees, and for patient partners and trainees: Sharing the CASS experience [Internet]. PxP; 2025 Sep 23 [cited Year Month Date]. Available from: https:\/\/pxphub.org\/canadian-arthritis-summer-school-learnings\/<\/a><\/p>\r\n

Note: please add the year, month and date into the Vancouver citation above as indicated.<\/p>\r\n

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