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UK Standards for Public Involvement in Research

Les auteurs : UK Standards for Public Involvement

JLA Guidebook

Les auteurs : James Lind Alliance

Our Recovery: A community program to help you survive and thrive in the face of pain

Les auteurs : Our Recovery

Article/Paper Site Internet

Envisioning a Future for Including Patient Involvement in Vocational Training in the Life Sciences Industry

Les auteurs : Liz Clark & Trishna Bharadia

Engaging a community to focus on upper limb function in people with multiple sclerosis: the ThinkHand campaign case study

Date : 2024

Les auteurs : Alison Thomson et al.

Patient authorship of medical research publications: An evolution, revolution, and solution?

Date : 2024

Les auteurs : Karen L. Woolley et al.

The PFMD Book of Good Practices

Les auteurs : Patient Focused Medicines Development

Patient Engagement Needs More Benefit Analysis, Fewer Theoretical Conversations

Date : 2024

Les auteurs : Ella Balasa

Bridging the Gap: A Personal Journey from Cystic Fibrosis to Patient Advocacy

Date : 2024

Les auteurs : Ella Balasa

Kidney Patient Involvement

Les auteurs : Kidney Research UK

PPI (Patient and Public Involvement) resources for applicants to NIHR research programmes

Date : 2019

Les auteurs : National Institute of Health and Care Research

What is Patient and Public Involvement and Engagement (PPIE)?

Les auteurs : Health Data Research UK

The right to participate: An under-utilised component of the right to the highest attainable standard health

Date : 2021

Les auteurs : Kwanele Asante

World leaders unite to embed social participation in health systems

Date : 2024

Les auteurs : Antoine Boivin, Vincent Dumez, Farin Shore, Amanda Bok

Trustworthy Evidence to Support Quality Digital Healthcare Policy for Underserved Communities: What Needs to Happen to Translate Evidence into Policy?

Date : 2024

Les auteurs : Clare L. Ardern et al.

Harnessing People’s Lived Experience to Strengthen Health Systems and Support Equitable Musculoskeletal Health Care

Date : 2023

Les auteurs : Joletta L. Belton, Helen Slater, T. K. Sundari Ravindran, Andrew M. Briggs

Patients as Partners in Research: There Is Plenty of Help for Researchers

Date : 2024

Les auteurs : Alison M. Hoens, Joletta Belton, Alex Scott, Clare L. Ardern

Article/Paper Site Internet

Stemming the tide: Investing early in the mental health of Ontario’s 7- to 12-year-olds

Date : 2023

Les auteurs : Various

Procedural pain management in children & youth: A toolkit for health professionals

Les auteurs : Various

Engaging youth and parents in clinical pediatric research: A case-based example

Date : 2023

Les auteurs : Elise G Martin et al.

Co-designing clinical trials alongside youth with chronic pain

Date : 2023

Les auteurs : Zina Zaslawski et al.

SKIP (Solutions for Kids in Pain) Resources

Les auteurs : Richard Stephens

Blogue (en anglais seulement)

PxP Blog with Joletta Belton – Post 3

Date : 2024

Les auteurs : Joletta Belton

A patient editor’s take on scientific publishing with Richard Stephens

Date : 2024

Les auteurs : Richard Stephens

Patient-driven research priorities for patient-centered measurement

Date : 2024

Les auteurs : Howard, A.F., Warner, L., Cuthbertson, L. et al.

Conferences led by patients facilitate democratic decision making in healthcare

Date : 2024

Les auteurs : Ajayi O, Gee P, Mulhall H, Richards D P, Riggare S.

Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Date : 2024

Les auteurs : Dr. Dawn P Richards et al.

Patient engagement in a Canadian health research funding institute: implementation and impact

Date : 2024

Les auteurs : Dr. Dawn P Richards et al.

A curated selection of resources to support and involve consumers in research

Date : 2022

Les auteurs : AccessCR

Resources to evaluate and improve Community Advisory Committees

Les auteurs : Health Issues Centre

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