PLATEFORME DE RESSOURCES

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-> Ressources par type

Article/Paper

Recognizing patient partner contributions to health research: a systematic review of reported practices

Date : 2023

Les auteurs : Grace Fox, Manoj M. Lalu, Tara Sabloff, Stuart G. Nicholls, Maureen Smith, Dawn Stacey, Faris Almoli & Dean A. Fergusson

Article/Paper

Personal science in Parkinson’s disease. A patient-led research study.

Date : 2022

Les auteurs : Sara Riggare

Slide Decks

Presentation Slides for Grant Review 101: The Basics of Reviewing Grant Applications

Date : 2023

Les auteurs : Dr. Dawn Richards for the Return to Health & Performance Lab (webinar recording also available on PxP Resource Hub)

Webinaires

Grant Review 101: The Basics of Reviewing Grant Applications

Date : 2023

Les auteurs : Dr. Dawn Richards for the Return to Health & Performance Lab (presentation slides also available on PxP Resource Hub)

Webinaires

Day 2 Session 1 Recording PxP 2023

Date : 2023

Les auteurs : Nader Ghasemlou, Linda Li, Diarmuid Denneny and Joletta Belton

Webinaires

Day 1 Session 3 Recording PxP 2023

Date : 2023

Les auteurs : Janice Tufte, Laurie Proulx, Anna Samson and Amy Price

Webinaires

Day 1 Session 2 Recording PxP 2023

Date : 2023

Les auteurs : Maria Dutarte, Rebecca Mbewe, Christine Broderick, Linda Hunter and Trudy Flynn

Webinaires

Day 1 Session 1 Recording PxP 2023

Date : 2023

Les auteurs : Angela Ruddock and Shoba Dawson

Article/Paper

Création d’une trousse d’outils visant à accroître la participation des Noirs, des Asiatiques et d’autres minorités ethniques à la recherche sur les soins de santé et les services sociaux

Date : 2022

Les auteurs : Azhar Farooqi, Karan Jutlla, Raghu Raghavan, Andrew Wilson, Mohammud Shams Uddin, Carol Akroyd, Naina Patel, Pamela Peggy Campbell-Morris & Aaisha Tasneem Farooqi

Article/Paper

Improving Kidney Disease Research in the Black Community: The Essential Role of Black Voices in the APOLLO Study

Date : 2021

Les auteurs : Ana S. Iltis et al.

Article/Paper

“He Who Owns the Data, Owns the Patient,” Black Participants and Clinical Trials

Date : 2022

Les auteurs : Breanna Reeves

PDF

Guide pour l’élaboration d’un plan sur la participation des patients à la recherche

Date : 2018

Les auteurs : Arthritis Research Canada, The PEIRS Project Team

Article/Paper

Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations

Date : 2020

Les auteurs : Lauri Arnstein, Anne Clare Wadsworth, Beverley Anne Yamamoto, Richard Stephens, Kawaldip Sehmi, Rachel Jones, Arabella Sargent, Thomas Gegeny & Karen L. Woolley

Article/Paper

Hidden in plain sight? Identifying patient-authored publications

Date : 2022

Les auteurs : Jacqui Oliver, Dawn Lobban, Laura Dormer, Joanne Walker, Richard Stephens & Karen Woolley

Site Internet

Plain language resources to support patient authorship of peer-reviewed publications

Les auteurs : Envision the Patient

Outils

Toolkit for co-creating plain language summaries of publications with patients

Les auteurs : Envision Pharma Group

Outils

WHO framework for meaningful engagement of people living with noncommunicable diseases, and mental health and neurological conditions

Date : 2023

Les auteurs : WHO

Site Internet

Access CR Consumer Involvement Resources

Date : Various

Les auteurs : Access CR

Article/Paper

Patient-Generated Hypotheses Journal Issue 1

Date : 2023

Les auteurs : Patient-Led Research Collaborative

Barriers to Citizen Science and Dissemination of Knowledge in Healthcare

Date : 2022

Les auteurs : Dana Lewis

From Individuals to Systems and Contributions to Creations: Novel Framework for Mapping the Efforts of Individuals by Convening The Center of Health and Health Care

Date : 2022

Les auteurs : Dana Lewis, Liz Salmi, Alicia Staley and John Harlow

Article/Paper

Personalizing Research: Involving, Inviting, and Engaging Patient Researchers

Date : 2022

Les auteurs : Dana Lewis

Outils

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PLATEFORME DE RESSOURCES

Recognizing patient partner contributions to health research: a systematic review of reported practices

Personal science in Parkinson’s disease. A patient-led research study.

Presentation Slides for Grant Review 101: The Basics of Reviewing Grant Applications

Grant Review 101: The Basics of Reviewing Grant Applications

Day 2 Session 1 Recording PxP 2023

Day 1 Session 3 Recording PxP 2023

Day 1 Session 2 Recording PxP 2023

Day 1 Session 1 Recording PxP 2023

Création d’une trousse d’outils visant à accroître la participation des Noirs, des Asiatiques et d’autres minorités ethniques à la recherche sur les soins de santé et les services sociaux

Improving Kidney Disease Research in the Black Community: The Essential Role of Black Voices in the APOLLO Study

“He Who Owns the Data, Owns the Patient,” Black Participants and Clinical Trials

Guide pour l’élaboration d’un plan sur la participation des patients à la recherche

Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations

Hidden in plain sight? Identifying patient-authored publications

Plain language resources to support patient authorship of peer-reviewed publications

Toolkit for co-creating plain language summaries of publications with patients

WHO framework for meaningful engagement of people living with noncommunicable diseases, and mental health and neurological conditions

Access CR Consumer Involvement Resources

Patient-Generated Hypotheses Journal Issue 1

Barriers to Citizen Science and Dissemination of Knowledge in Healthcare

From Individuals to Systems and Contributions to Creations: Novel Framework for Mapping the Efforts of Individuals by Convening The Center of Health and Health Care

Personalizing Research: Involving, Inviting, and Engaging Patient Researchers

Engagement in Health Research Literature Explorer

Engagement Tool Resource Repository

Building Effective Multi-Stakeholder Research Teams

PCORI Research Fundamentals

EUPATI Connect matchmaking platform for researchers and EUPATI Fellows

EUPATI Learning Lab trainings for researchers on patient engagement

Open Classroom training resources on medicines R&D, medical devices and digital health

European Patients’ Academy on Therapeutic Innovation (EUPATI)

Nouvelles et mises à jour