RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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Blog

PxP Blog with Joletta Belton – Post 3

Year: 2024

Authors: Joletta Belton

Article/Paper

Patient-driven research priorities for patient-centered measurement

Year: 2024

Authors: Howard, A.F., Warner, L., Cuthbertson, L. et al.

Article/Paper

Conferences led by patients facilitate democratic decision making in healthcare

Year: 2024

Authors: Ajayi O, Gee P, Mulhall H, Richards D P, Riggare S.

Website

Consumer Involvement & Engagement Toolkit

Authors: Australian Clinical Trials Alliance

Website

Solutions for Kids in Pain (SKIP) Resources

Authors: Solutions for Kids in Pain (SKIP)

Website

CPN Resources for Patients

Authors: Chronic Pain Network (CPN)

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain and Zal Press

PDF

Methods of Patient and Public Engagement

Year: 2020

Authors: University of Manitoba

Website

Camden Coalition

Authors: Camden Coalition

Website

Ovarian Cancer Research Alliance (OCRA)

Authors: Ovarian Cancer Research Alliance (OCRA)

Website

National Coalition for Cancer Survivorship (NCCS)

Authors: National Coalition for Cancer Survivorship (NCCS)

Article/Paper

Who should I involve in my research and why? Patients, carers or the public?

Year: 2021

Authors: Kristina Staley, Jim Elliott, Derek Stewart and Roger Wilson

Webinars

Motivations for being a patient partner in research

Year: 2024

Authors: Anna Samson, Larry Funnell, Therese Lane, and Kimberly Strain

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