RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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Article/Paper

The right to participate: An under-utilised component of the right to the highest attainable standard health

Year: 2021

Authors: Kwanele Asante

Article/Paper

World leaders unite to embed social participation in health systems

Year: 2024

Authors: Antoine Boivin, Vincent Dumez, Farin Shore, Amanda Bok

Article/Paper

Trustworthy Evidence to Support Quality Digital Healthcare Policy for Underserved Communities: What Needs to Happen to Translate Evidence into Policy?

Year: 2024

Authors: Clare L. Ardern et al.

Article/Paper

Harnessing People’s Lived Experience to Strengthen Health Systems and Support Equitable Musculoskeletal Health Care

Year: 2023

Authors: Joletta L. Belton, Helen Slater, T. K. Sundari Ravindran, Andrew M. Briggs

Article/Paper

Patients as Partners in Research: There Is Plenty of Help for Researchers

Year: 2024

Authors: Alison M. Hoens, Joletta Belton, Alex Scott, Clare L. Ardern

Article/PaperWebsite

Stemming the tide: Investing early in the mental health of Ontario’s 7- to 12-year-olds

Year: 2023

Authors: Various

PDF

Procedural pain management in children & youth: A toolkit for health professionals

Authors: Various

Article/Paper

Engaging youth and parents in clinical pediatric research: A case-based example

Year: 2023

Authors: Elise G Martin et al.

Article/Paper

Co-designing clinical trials alongside youth with chronic pain

Year: 2023

Authors: Zina Zaslawski et al.

Website

SKIP (Solutions for Kids in Pain) Resources

Authors: Richard Stephens

Blog

PxP Blog with Joletta Belton – Post 3

Year: 2024

Authors: Joletta Belton

Webinars

A patient editor’s take on scientific publishing with Richard Stephens

Year: 2024

Authors: Richard Stephens

Article/Paper

Patient-driven research priorities for patient-centered measurement

Year: 2024

Authors: Howard, A.F., Warner, L., Cuthbertson, L. et al.

Article/Paper

Conferences led by patients facilitate democratic decision making in healthcare

Year: 2024

Authors: Ajayi O, Gee P, Mulhall H, Richards D P, Riggare S.

Article/Paper

Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Year: 2024

Authors: Dr. Dawn P Richards et al.

Article/Paper

Patient engagement in a Canadian health research funding institute: implementation and impact

Year: 2024

Authors: Dr. Dawn P Richards et al.

Website

A curated selection of resources to support and involve consumers in research

Year: 2022

Authors: AccessCR

Website

Resources to evaluate and improve Community Advisory Committees

Authors: Health Issues Centre

Website

Consumer Involvement & Engagement Toolkit

Authors: Australian Clinical Trials Alliance

Website

Solutions for Kids in Pain (SKIP) Resources

Authors: Solutions for Kids in Pain (SKIP)

Website

CPN Resources for Patients

Authors: Chronic Pain Network (CPN)

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain and Zal Press

Article/Paper

Reflections on patient engagement by patient partners: how it can go wrong

Year: 2023

Authors: Dawn P Richards et al.

Website

A series of co-developed knowledge tools that are applicable in a variety of research contexts on engaging patients and families

Authors: Kids Brain Health Network

Website

The Involvement Matrix

Authors: Various

PDF

Get Involved in Quality Improvement: A guide for Patient and Caregiver Advisors

Authors: Health Quality Ontario

Website

A non-technical summary of predatory journals and the impact they could have on the patient community

Year: 2022

Authors: The Ottawa Hospital Research Institute

PDF

Methods of Patient and Public Engagement

Year: 2020

Authors: University of Manitoba

Article/Paper

Improving Kidney Disease Research in the Black Community: The Essential Role of Black Voices in the APOLLO Study

Year: 2022

Authors: Ana S. Iltis et al.

Article/Paper

“He Who Owns the Data, Owns the Patient,” Black Participants and Clinical Trials

Year: 2022

Authors: Breanna Reeves

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