RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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Camden Coalition

Authors: Camden Coalition

Ovarian Cancer Research Alliance (OCRA)

Authors: Ovarian Cancer Research Alliance (OCRA)

National Coalition for Cancer Survivorship (NCCS)

Authors: National Coalition for Cancer Survivorship (NCCS)

Sharing space at the research table: exploring public and patient involvement in a methodology priority setting partnership

Year: 2023

Authors: Nikita N. Burke et al.

Public involvement could usefully inform ethical review, but rarely does: what are the implications?

Year: 2017

Authors: Kristina Staley and Jim Elliott

Who should I involve in my research and why? Patients, carers or the public?

Year: 2021

Authors: Kristina Staley, Jim Elliott, Derek Stewart and Roger Wilson

Developing consensus on core outcome sets of domains for acute, the transition from acute to chronic, recurrent/episodic, and chronic pain: results of the INTEGRATE-pain Delphi process

Year: 2023

Authors: Giulia Bova et al.

Recommendations for the development, implementation, and reporting of control interventions in efficacy and mechanistic trials of physical, psychological, and self-management therapies: the CoPPS Statement

Year: 2023

Authors: David Hohenschurz-Schmidt et al.

Motivations for being a patient partner in research

Year: 2024

Authors: Anna Samson, Larry Funnell, Therese Lane, and Kimberly Strain

Impact of sickle cell disease on patientsʼ daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY)

Year: 2020

Authors: Ifeyinwa Osunkwo et al.

Participant Chat Summary from PxP 2023 Day 3 Session 3

Year: 2023

Authors: PxP Hub

Participant Chat Summary from PxP 2023 Day 3 Session 2

Year: 2023

Authors: PxP Hub

Participant Chat Summary from PxP 2023 Day 3 Session 1

Year: 2023

Authors: PxP Hub

Chat Summary PxP and PERA Webinar 2 2024

Year: 2024

Authors: PxP Hub

PxP and PERA 2024 Webinar 1: Demystifying the research process from patient partner perspectives

Year: 2024

Authors: Ron Beleno, Trinity Lowthian and Ellen Wang

Chat Summary from PxP and PERA 2024 Webinar 1

Year: 2024

Authors: PxP Hub

PxP Blog with Joletta Belton – Post 2

Year: 2024

Authors: Joletta Belton

Participant Chat Summary from PxP 2023 Day 2 Session 3

Year: 2023

Authors: PxP Hub

Participant Chat Summary from PxP 2023 Day 2 Session 2

Year: 2023

Authors: PxP Hub

Participant Chat Summary from PxP 2023 Day 2 Session 1

Year: 2023

Authors: PxP Hub

PxP Blog with Joletta Belton – Post 1

Year: 2023

Authors: Joletta Belton

Day 3 Session 3 Recording PxP 2023

Year: 2023

Authors: Eileen Davidson, Karen Woolley, Joletta Belton and Janice Tufte

Day 3 Session 2 Recording PxP 2023

Year: 2023

Authors: Alma McCormick, Hem Devan, Cheryl Davies and Sandra Jayacodi

Day 3 Session 1 Recording PxP 2023

Year: 2023

Authors: Lynn Laidlaw, Sabrina Poirier, Patrick Gee and Janelle Bowden

Day 2 Session 3 PxP 2023

Year: 2023

Authors: Hannah Wei, Sneha Dave and Linda Hunter

Participant Chat Summary from PxP 2023 Day 1 Session 3

Year: 2023

Authors: PxP Hub

Participant Chat Summary from PxP 2023 Day 1 Session 2

Year: 2023

Authors: PxP Hub

Day 2 Session 2 Recording PxP 2023

Year: 2023

Authors: Dana Lewis, Alex Haagaard, Sara Riggare and Trudy Flynn

Participant Chat Summary from PxP 2023 Day 1 Session 1

Year: 2023

Authors: PxP Hub

Patient Access to Papers

Authors: Elsevier

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