RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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Learning Portal

Course: A How-to Guide for Patient Engagement in Research

Year: 2022

Authors: CIHR-IMHA Patient Engagement Research Ambassadors (PERA)

Article/Paper

Patient and public involvement in an international rheumatology translational research project: an evaluation

Year: 2022

Authors: Savia de Souza, Eva C. Johansson, Susanne Karlfeldt, Karim Raza & Ruth Williams

Article/Paper

Patient-centered consultations for persons with musculoskeletal conditions

Year: 2022

Authors: Joletta Belton, Hollie Birkinshaw & Tamar Pincus

Article/Paper

A Healing Journey with Chronic Pain: A Meta-Ethnography Synthesizing 195 Qualitative Studies

Year: 2021

Authors: Francine Toye, PhD, Joletta Belton, MSc, Erin Hannink, DPT, Kate Seers, DSc, Karen Barker, PhD

Article/Paper

Patients as Partners in Research: It’s the Right Thing to Do

Year: 2019

Authors: Joletta Belton, MSc, Alison Hoens, MSc, BScPT, Alex Scott, PT, PhD, Clare L. Ardern, PT, PhD

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain and Zal Press

Blog

Rosamund Snow: What makes a real patient?

Year: 2016

Authors: Rosamund Snow

Website

Alberta SPOR SUPPORT Unit (AbSPORU)

Authors: Alberta SPOR SUPPORT Unit (AbSPORU)

Website

Patient Advisors Network

Authors: Patient Advisors Network

Website

Health Research BC

Authors: Health Research BC

Other Tools

Patient Compensation Tools

Year: Unknown

Authors: National Health Council

PDF

Medical Education and Research Involvement with Patient and Public Partners

Year: Unknown

Authors: Amy Price DPhil, Larry Chu MD | Stanford Anesthesia Informatics and Media (AIM) Lab

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