RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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Discussion sur le Langage Simple

Authors: Candace Ramjohn, Anna Samson, Hetty Mulhall

Plain Language Talk

Authors: Candace Ramjohn, Anna Samson, Hetty Mulhall

Rédiger un résumé en langage simple

Authors: Alliance pour des données probantes de la SRAP

How to Write a Plain Language Summary

Authors: Strategy for Patient-Oriented Research (SPOR) Evidence Alliance

Attending In-person Research Conferences When Your Patient or Family Partners Have a Chronic Illness

Year: 2024

Authors: Rae Martens

Article/Paper Blog

Dear sceptics of patient engagement in research

Year: 2024

Authors: Dawn P Richards

Medical trauma in young adults with inflammatory bowel disease: The role of trauma-informed care

Year: 2024

Authors: Amy K. Bugwadi et al.

Caring for young adult men with inflammatory bowel disease: Clinician and patient perspectives

Year: 2024

Authors: Amy K. Bugwadia et al.

Article/Paper Blog

Remuneration of African patient partners is an important tool for health justice

Year: 2024

Authors: Kwanele Asante

Participant Chat Summary from PxP 2024 Day 3 Session 3

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 3 Session 2

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 3 Session 1

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 2 Session 3

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 2 Session 2

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 2 Session 1

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 1 Session 3

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 1 Session 2

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 1 Session 1

Year: 2024

Authors: PxP Hub

Learning about different types of recognition for patient partners. PxP 2024 Day 3, Session 3.

Year: 2024

Authors: Jack Nunn, Kimberly Strain, Kwanele Asante, Sarah Lukeman

Highlighting other types of (often non-academic) patient partnerships. PxP 2024 Day 3, Session 2.

Year: 2024

Authors: Ella Balasa, Thelma Barber, Zac Miles, Runcie Chidebe

Publishing as (and with) patient partners. PxP 2024 Day 3, Session 1.

Year: 2024

Authors: Harry Iles-mann, Nidhi Swarup, Sophia Walker, Clare Ardern

Bringing new voices to research and building diversity. PxP 2024 Day 2, Session 3.

Year: 2024

Authors: Oluwafemi Ajayi, Patricia de Luca, Stephanie Paravan, Raissa Amany

Navigating difficult experiences in patient engagement. PxP 2024 Day 2, Session 2.

Year: 2024

Authors: Michael Falcon, Nichole Jefferson, Sally Crowe, Thomas Smith

Exploring some of the ethics of patient partnership in research. PxP 2024 Day 2, Session 1.

Year: 2024

Authors: Isabel Jordan, Jim Elliott, Vina Mohabir, Simone Uwan

Taking care as a patient partner. PxP 2024 Day 1, Session 3.

Year: 2024

Authors: Christopher Munt, Shyam Muthuramalingam, Rae Martens

Raising the bar and sharing the power. PxP 2024 Day 1, Session 2.

Year: 2024

Authors: Cherelle Augustine, Patrick Gee, Zahra Alidina, Fez Awan

Embracing the ‘lived experience’ part of your identity. PxP 2024 Day 1, Session 1.

Year: 2024

Authors: Angie Clerc-Hawke, Libby Humphris, Oluwafemi Ajayi, David Gilbert

Patients and Families as Partners in Patient-Oriented Research: How Should They Be Compensated?

Year: 2023

Authors: Monika Novak-Pavlic et al.

CP & Ontwikkeling

Authors: CP & Ontwikkeling

Designing a tool to support patient and public involvement in research projects: the Involvement Matrix

Year: 2020

Authors: Dirk-Wouter Smits, Karen van Meeteren, Martijn Klem, Mattijs Alsem & Marjolijn Ketelaar

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