RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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Webinars

PxP and PERA 2024 Webinar 1: Demystifying the research process from patient partner perspectives

Year: 2024

Authors: Ron Beleno, Trinity Lowthian and Ellen Wang

Blog

Chat Summary from PxP and PERA 2024 Webinar 1

Year: 2024

Authors: PxP Hub

Blog

PxP Blog with Joletta Belton – Post 2

Year: 2024

Authors: Joletta Belton

Blog

Participant Chat Summary from PxP 2023 Day 2 Session 3

Year: 2023

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2023 Day 2 Session 2

Year: 2023

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2023 Day 2 Session 1

Year: 2023

Authors: PxP Hub

Blog

PxP Blog with Joletta Belton – Post 1

Year: 2023

Authors: Joletta Belton

Webinars

Day 3 Session 3 Recording PxP 2023

Year: 2023

Authors: Eileen Davidson, Karen Woolley, Joletta Belton and Janice Tufte

Webinars

Day 3 Session 2 Recording PxP 2023

Year: 2023

Authors: Alma McCormick, Hem Devan, Cheryl Davies and Sandra Jayacodi

Webinars

Day 3 Session 1 Recording PxP 2023

Year: 2023

Authors: Lynn Laidlaw, Sabrina Poirier, Patrick Gee and Janelle Bowden

Webinars

Day 2 Session 3 PxP 2023

Year: 2023

Authors: Hannah Wei, Sneha Dave and Linda Hunter

Blog

Participant Chat Summary from PxP 2023 Day 1 Session 3

Year: 2023

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2023 Day 1 Session 2

Year: 2023

Authors: PxP Hub

Webinars

Day 2 Session 2 Recording PxP 2023

Year: 2023

Authors: Dana Lewis, Alex Haagaard, Sara Riggare and Trudy Flynn

Blog

Participant Chat Summary from PxP 2023 Day 1 Session 1

Year: 2023

Authors: PxP Hub

Website

Patient Access to Papers

Authors: Elsevier

Podcast

As Per Usual Podcast

Authors: Bryn Robinson and Anna Chudyk

Other Tools

CIHR-IG Patient Partner Compensation Guidelines

Year: 2023

Authors: Canadian Institutes of Health Research – Institute of Genetics

Other Tools

CIHR-IMHA Patient Compensation Guideline

Year: 2023

Authors: Canadian Institutes of Health Research – Institute of Musculoskeletal Health and Arthritis

Article/Paper

Recognizing patient partner contributions to health research: a systematic review of reported practices

Year: 2023

Authors: Grace Fox, Manoj M. Lalu, Tara Sabloff, Stuart G. Nicholls, Maureen Smith, Dawn Stacey, Faris Almoli & Dean A. Fergusson

Article/Paper

Personal science in Parkinson’s disease. A patient-led research study.

Year: 2022

Authors: Sara Riggare

Slide Decks

Presentation Slides for Grant Review 101: The Basics of Reviewing Grant Applications

Year: 2023

Authors: Dr. Dawn Richards for the Return to Health & Performance Lab (webinar recording also available on PxP Resource Hub)

Webinars

Grant Review 101: The Basics of Reviewing Grant Applications

Year: 2023

Authors: Dr. Dawn Richards for the Return to Health & Performance Lab (presentation slides also available on PxP Resource Hub)

Webinars

Day 2 Session 1 Recording PxP 2023

Year: 2023

Authors: Nader Ghasemlou, Linda Li, Diarmuid Denneny and Joletta Belton

Webinars

Day 1 Session 3 Recording PxP 2023

Year: 2023

Authors: Janice Tufte, Laurie Proulx, Anna Samson and Amy Price

Webinars

Day 1 Session 2 Recording PxP 2023

Year: 2023

Authors: Maria Dutarte, Rebecca Mbewe, Christine Broderick, Linda Hunter and Trudy Flynn

Webinars

Day 1 Session 1 Recording PxP 2023

Year: 2023

Authors: Angela Ruddock and Shoba Dawson

Article/Paper

Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research

Year: 2022

Authors: Azhar Farooqi, Karan Jutlla, Raghu Raghavan, Andrew Wilson, Mohammud Shams Uddin, Carol Akroyd, Naina Patel, Pamela Peggy Campbell-Morris & Aaisha Tasneem Farooqi

Article/Paper

Improving Kidney Disease Research in the Black Community: The Essential Role of Black Voices in the APOLLO Study

Year: 2021

Authors: Ana S. Iltis et al.

Article/Paper

“He Who Owns the Data, Owns the Patient,” Black Participants and Clinical Trials

Year: 2022

Authors: Breanna Reeves

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