RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

Photo shows a small part of the side of a person's head, with their back to the camera. The photo is mainly focused on the hands of this individual, which they are using to frame the sunset.
PDF

Workbook to guide the development of a Patient Engagement In Research (PEIR) Plan

Year: 2018

Authors: Arthritis Research Canada, The PEIRS Project Team

Article/Paper

Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations

Year: 2020

Authors: Lauri Arnstein, Anne Clare Wadsworth, Beverley Anne Yamamoto, Richard Stephens, Kawaldip Sehmi, Rachel Jones, Arabella Sargent, Thomas Gegeny & Karen L. Woolley

Article/Paper

Hidden in plain sight? Identifying patient-authored publications

Year: 2022

Authors: Jacqui Oliver, Dawn Lobban, Laura Dormer, Joanne Walker, Richard Stephens & Karen Woolley

Article/Paper

Patient-Generated Hypotheses Journal Issue 1

Year: 2023

Authors: Patient-Led Research Collaborative

Blog

Co-creating through Social Media Crowdsourcing

Year: 2022

Authors: Dr. Dawn Richards

Blog

Engaging Patient Partners as Peer Reviewers of Grant Applications: Tips for Everyone Involved

Year: 2023

Authors: Dawn Richards, Deb Baranec, Eileen Davidson, Trudy Flynn

Blog

Case Study: Expanding and supporting the patient partner community in research

Year: 2023

Authors: Laurie Proulx, Nadine Lalonde, Anna Samson, Linda Roy, Julie McKenna

Article/Paper

Patients as Partners in Research: There Is Plenty of Help for Researchers

Year: 2020

Authors: Alison M. Hoens, MSc, BScPT, Joletta Belton, MSc, Alex Scott, PT, PhD, Clare L. Ardern, PT, PhD

Learning Portal

Patient Engagement Tool Kit

Year: 2023

Authors: Patient Outcomes Research to Advance Learning – PORTAL – PCORI funded project

PDF

Patient-Led Research Scorecards

Year: 2023

Authors: Council of Medical Speciality Societies and Patient-Led Research Collaborative

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