RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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You can also search our resources by type

Website

Chronic Pain Australia

Authors: Chronic Pain Australia

Website

Endometriosis Australia

Authors: Endometriosis Australia

Website

The Kids Research Institute Australia is committed to providing opportunities for community members and health consumers to contribute to our research.

Year: 2024

Authors: The KIDS Research Institute Australia

Website

Consumer Involvement & Engagement Toolkit

Authors: Australian Clinical Trials Alliance

Website

Involving Consumers in Health and Medical Research: A practical handbook for organisations, researchers, consumers and funders

Authors: Western Australian Health Translation Network

Website

Tools for working together – Doing Research Together

Authors: NSW Regional and Health Partners

Website

InFORMed: Redesigning Consent to Research

Authors: InFORMed

Article/Paper

Solutions for Kids in Pain: A Knowledge Mobilization Network Built on a Foundation of Patient Partnership

Year: 2024

Authors: Dawn P. Richards et al.

Article/Paper

Patient engagement in designing, conducting, and disseminating clinical pain research: IMMPACT recommended considerations

Year: 2024

Authors: Haroutounian, Simon et al.

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain, Zal Press

Website

Methods for Supporting Diverse Patient Engagement in a Diverse World: The BC SUPPORT Unit Tapestry Project

Authors: Health Research BC

Article/PaperWebsite

Humanising Healthcare

Year: 2022

Authors: David Gilbert

PDF

The Patient Leadership Triangle

Authors: David Gilbert

Other ToolsWebsite

The Patient Revolution: How We Can Heal the Healthcare System

Year: 2019

Authors: David Gilbert

PDF

Culture matters: using a cultural contexts of health approach to enhance policy-making

Authors: The World Health Organization

Article/Paper

Meaningful Engagement of People Living With Noncommunicable Diseases: Challenges and Opportunities

Year: 2024

Authors: Mark Thomaz Ugliara Barone & Emma Klatman

Article/Paper

Does patient and public involvement impact public health decision-making? A 10 year retrospective analysis of public consultation in Brazil

Year: 2023

Authors: Ana Carolina De Freitas Lopes, Hillegonda Maria Dutilh Novaes & Patrícia Coelho De Soárez

Website

Priorities for Health and Care Research

Year: 2024

Authors: Nuffield Department of Primary Care Health Sciences

Website

UK Standards for Public Involvement in Research

Authors: UK Standards for Public Involvement

Website

JLA Guidebook

Authors: James Lind Alliance

Website

Our Recovery: A community program to help you survive and thrive in the face of pain

Authors: Our Recovery

Article/PaperWebsite

Envisioning a Future for Including Patient Involvement in Vocational Training in the Life Sciences Industry

Authors: Liz Clark & Trishna Bharadia

Article/Paper

Engaging a community to focus on upper limb function in people with multiple sclerosis: the ThinkHand campaign case study

Year: 2024

Authors: Alison Thomson et al.

Article/Paper

Patient authorship of medical research publications: An evolution, revolution, and solution?

Year: 2024

Authors: Karen L. Woolley et al.

PDF

The PFMD Book of Good Practices

Authors: Patient Focused Medicines Development

Article/Paper

Patient Engagement Needs More Benefit Analysis, Fewer Theoretical Conversations

Year: 2024

Authors: Ella Balasa

Webinars

Bridging the Gap: A Personal Journey from Cystic Fibrosis to Patient Advocacy

Year: 2024

Authors: Ella Balasa

Website

Kidney Patient Involvement

Authors: Kidney Research UK

Website

PPI (Patient and Public Involvement) resources for applicants to NIHR research programmes

Year: 2019

Authors: National Institute of Health and Care Research

Website

What is Patient and Public Involvement and Engagement (PPIE)?

Authors: Health Data Research UK

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