RESOURCE HUB

Looking for articles, webinars, and other resources on a variety of health research topics? Explore our library below filtered by resource type.

Resources by Type

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  • Article/Paper
  • Blog
  • Learning Portal
  • Other Tools
  • PDF
  • Podcast
  • Slide Decks
  • Webinars
  • Website
PDF

Medical Education and Research Involvement with Patient and Public Partners

Year: Unknown

Authors: Amy Price DPhil, Larry Chu MD | Stanford Anesthesia Informatics and Media (AIM) Lab

Other Tools

Patient Compensation Tools

Year: Unknown

Authors: National Health Council

Website

Health Research BC

Authors: Health Research BC

Website

Patient Advisors Network

Authors: Patient Advisors Network

Website

Alberta SPOR SUPPORT Unit (AbSPORU)

Authors: Alberta SPOR SUPPORT Unit (AbSPORU)

Blog

Rosamund Snow: What makes a real patient?

Year: 2016

Authors: Rosamund Snow

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain and Zal Press

Article/Paper

Patients as Partners in Research: It’s the Right Thing to Do

Year: 2019

Authors: Joletta Belton, MSc, Alison Hoens, MSc, BScPT, Alex Scott, PT, PhD, Clare L. Ardern, PT, PhD

Article/Paper

A Healing Journey with Chronic Pain: A Meta-Ethnography Synthesizing 195 Qualitative Studies

Year: 2021

Authors: Francine Toye, PhD, Joletta Belton, MSc, Erin Hannink, DPT, Kate Seers, DSc, Karen Barker, PhD

Article/Paper

Patient-centered consultations for persons with musculoskeletal conditions

Year: 2022

Authors: Joletta Belton, Hollie Birkinshaw & Tamar Pincus

Article/Paper

Patient and public involvement in an international rheumatology translational research project: an evaluation

Year: 2022

Authors: Savia de Souza, Eva C. Johansson, Susanne Karlfeldt, Karim Raza & Ruth Williams

Learning Portal

Course: A How-to Guide for Patient Engagement in Research

Year: 2022

Authors: CIHR-IMHA Patient Engagement Research Ambassadors (PERA)

Article/Paper

Reflections on patient engagement by patient partners: how it can go wrong

Year: 2023

Authors: Dawn P. Richards, Sabrina Poirier, Vina Mohabir, Laurie Proulx, Sue Robins & Jeffery Smith

PDF

Patient-Led Research Scorecards

Year: 2023

Authors: Council of Medical Speciality Societies and Patient-Led Research Collaborative

Learning Portal

Patient Engagement Tool Kit

Year: 2023

Authors: Patient Outcomes Research to Advance Learning – PORTAL – PCORI funded project

Article/Paper

Patients as Partners in Research: There Is Plenty of Help for Researchers

Year: 2020

Authors: Alison M. Hoens, MSc, BScPT, Joletta Belton, MSc, Alex Scott, PT, PhD, Clare L. Ardern, PT, PhD

Blog

Case Study: Expanding and supporting the patient partner community in research

Year: 2023

Authors: Laurie Proulx, Nadine Lalonde, Anna Samson, Linda Roy, Julie McKenna

Blog

Engaging Patient Partners as Peer Reviewers of Grant Applications: Tips for Everyone Involved

Year: 2023

Authors: Dawn Richards, Deb Baranec, Eileen Davidson, Trudy Flynn

Blog

Co-creating through Social Media Crowdsourcing

Year: 2022

Authors: Dr. Dawn Richards

Article/Paper

Patient-Generated Hypotheses Journal Issue 1

Year: 2023

Authors: Patient-Led Research Collaborative

Article/Paper

Hidden in plain sight? Identifying patient-authored publications

Year: 2022

Authors: Jacqui Oliver, Dawn Lobban, Laura Dormer, Joanne Walker, Richard Stephens & Karen Woolley

Article/Paper

Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations

Year: 2020

Authors: Lauri Arnstein, Anne Clare Wadsworth, Beverley Anne Yamamoto, Richard Stephens, Kawaldip Sehmi, Rachel Jones, Arabella Sargent, Thomas Gegeny & Karen L. Woolley

PDF

Workbook to guide the development of a Patient Engagement In Research (PEIR) Plan

Year: 2018

Authors: Arthritis Research Canada, The PEIRS Project Team

Article/Paper

Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research

Year: 2022

Authors: Azhar Farooqi, Karan Jutlla, Raghu Raghavan, Andrew Wilson, Mohammud Shams Uddin, Carol Akroyd, Naina Patel, Pamela Peggy Campbell-Morris & Aaisha Tasneem Farooqi

Webinars

Day 1 Session 1 Recording PxP 2023

Year: 2023

Authors: Angela Ruddock and Shoba Dawson

Webinars

Day 1 Session 2 Recording PxP 2023

Year: 2023

Authors: Maria Dutarte, Rebecca Mbewe, Christine Broderick, Linda Hunter and Trudy Flynn

Webinars

Day 1 Session 3 Recording PxP 2023

Year: 2023

Authors: Janice Tufte, Laurie Proulx, Anna Samson and Amy Price

Webinars

Day 2 Session 1 Recording PxP 2023

Year: 2023

Authors: Nader Ghasemlou, Linda Li, Diarmuid Denneny and Joletta Belton

Webinars

Grant Review 101: The Basics of Reviewing Grant Applications

Year: 2023

Authors: Dr. Dawn Richards for the Return to Health & Performance Lab (presentation slides also available on PxP Resource Hub)

Slide Decks

Presentation Slides for Grant Review 101: The Basics of Reviewing Grant Applications

Year: 2023

Authors: Dr. Dawn Richards for the Return to Health & Performance Lab (webinar recording also available on PxP Resource Hub)

Article/Paper

Recognizing patient partner contributions to health research: a systematic review of reported practices

Year: 2023

Authors: Grace Fox, Manoj M. Lalu, Tara Sabloff, Stuart G. Nicholls, Maureen Smith, Dawn Stacey, Faris Almoli & Dean A. Fergusson

Other Tools

CIHR-IMHA Patient Compensation Guideline

Year: 2023

Authors: Canadian Institutes of Health Research – Institute of Musculoskeletal Health and Arthritis

Other Tools

CIHR-IG Patient Partner Compensation Guidelines

Year: 2023

Authors: Canadian Institutes of Health Research – Institute of Genetics

Podcast

As Per Usual Podcast

Authors: Bryn Robinson and Anna Chudyk

Webinars

Day 2 Session 2 Recording PxP 2023

Year: 2023

Authors: Dana Lewis, Alex Haagaard, Sara Riggare and Trudy Flynn

Webinars

Day 2 Session 3 PxP 2023

Year: 2023

Authors: Hannah Wei, Sneha Dave and Linda Hunter

Webinars

Day 3 Session 1 Recording PxP 2023

Year: 2023

Authors: Lynn Laidlaw, Sabrina Poirier, Patrick Gee and Janelle Bowden

Webinars

Day 3 Session 2 Recording PxP 2023

Year: 2023

Authors: Alma McCormick, Hem Devan, Cheryl Davies and Sandra Jayacodi

Webinars

Day 3 Session 3 Recording PxP 2023

Year: 2023

Authors: Eileen Davidson, Karen Woolley, Joletta Belton and Janice Tufte

Blog

PxP Blog with Joletta Belton – Post 1

Year: 2023

Authors: Joletta Belton

Blog

PxP Blog with Joletta Belton – Post 2

Year: 2024

Authors: Joletta Belton

Webinars

Motivations for being a patient partner in research

Year: 2024

Authors: Anna Samson, Larry Funnell, Therese Lane, and Kimberly Strain

Article/Paper

Who should I involve in my research and why? Patients, carers or the public?

Year: 2021

Authors: Kristina Staley, Jim Elliott, Derek Stewart and Roger Wilson

Website

National Coalition for Cancer Survivorship (NCCS)

Authors: National Coalition for Cancer Survivorship (NCCS)

Website

Ovarian Cancer Research Alliance (OCRA)

Authors: Ovarian Cancer Research Alliance (OCRA)

Website

Camden Coalition

Authors: Camden Coalition

PDF

Methods of Patient and Public Engagement

Year: 2020

Authors: University of Manitoba

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain and Zal Press

Website

CPN Resources for Patients

Authors: Chronic Pain Network (CPN)

Website

Solutions for Kids in Pain (SKIP) Resources

Authors: Solutions for Kids in Pain (SKIP)

Website

Consumer Involvement & Engagement Toolkit

Authors: Australian Clinical Trials Alliance

Article/Paper

Conferences led by patients facilitate democratic decision making in healthcare

Year: 2024

Authors: Ajayi O, Gee P, Mulhall H, Richards D P, Riggare S.

Article/Paper

Patient-driven research priorities for patient-centered measurement

Year: 2024

Authors: Howard, A.F., Warner, L., Cuthbertson, L. et al.

Blog

PxP Blog with Joletta Belton – Post 3

Year: 2024

Authors: Joletta Belton

Article/Paper

Patients as Partners in Research: There Is Plenty of Help for Researchers

Year: 2024

Authors: Alison M. Hoens, Joletta Belton, Alex Scott, Clare L. Ardern

Article/Paper

Harnessing People’s Lived Experience to Strengthen Health Systems and Support Equitable Musculoskeletal Health Care

Year: 2023

Authors: Joletta L. Belton, Helen Slater, T. K. Sundari Ravindran, Andrew M. Briggs

Article/Paper

World leaders unite to embed social participation in health systems

Year: 2024

Authors: Antoine Boivin, Vincent Dumez, Farin Shore, Amanda Bok

Website

Kidney Patient Involvement

Authors: Kidney Research UK

PDF

The PFMD Book of Good Practices

Authors: Patient Focused Medicines Development

Website

JLA Guidebook

Authors: James Lind Alliance

Website

UK Standards for Public Involvement in Research

Authors: UK Standards for Public Involvement

Website

Priorities for Health and Care Research

Year: 2024

Authors: Nuffield Department of Primary Care Health Sciences

Article/Paper

Does patient and public involvement impact public health decision-making? A 10 year retrospective analysis of public consultation in Brazil

Year: 2023

Authors: Ana Carolina De Freitas Lopes, Hillegonda Maria Dutilh Novaes & Patrícia Coelho De Soárez

Article/PaperWebsite

Humanising Healthcare

Year: 2022

Authors: David Gilbert

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain, Zal Press

Website

Consumer Involvement & Engagement Toolkit

Authors: Australian Clinical Trials Alliance

Website

Endometriosis Australia

Authors: Endometriosis Australia

Website

Chronic Pain Australia

Authors: Chronic Pain Australia

Website

The National Aboriginal Community Controlled Health Organisation (NACCHO)

Authors: The National Aboriginal Community Controlled Health Organisation (NACCHO)

Website

Solutions for Kids in Pain (SKIP)

Authors: Solutions for Kids in Pain

Website

Pediatric Pain

Authors: Children’s Healthcare Canada

Article/Paper

Designing a tool to support patient and public involvement in research projects: the Involvement Matrix

Year: 2020

Authors: Dirk-Wouter Smits, Karen van Meeteren, Martijn Klem, Mattijs Alsem & Marjolijn Ketelaar

Website

CP & Ontwikkeling

Authors: CP & Ontwikkeling

Webinars

Embracing the ‘lived experience’ part of your identity. PxP 2024 Day 1, Session 1.

Year: 2024

Authors: Angie Clerc-Hawke, Libby Humphris, Oluwafemi Ajayi, David Gilbert

Webinars

Raising the bar and sharing the power. PxP 2024 Day 1, Session 2.

Year: 2024

Authors: Cherelle Augustine, Patrick Gee, Zahra Alidina, Fez Awan

Webinars

Taking care as a patient partner. PxP 2024 Day 1, Session 3.

Year: 2024

Authors: Christopher Munt, Shyam Muthuramalingam, Rae Martens

Webinars

Exploring some of the ethics of patient partnership in research. PxP 2024 Day 2, Session 1.

Year: 2024

Authors: Isabel Jordan, Jim Elliott, Vina Mohabir, Simone Uwan

Webinars

Navigating difficult experiences in patient engagement. PxP 2024 Day 2, Session 2.

Year: 2024

Authors: Michael Falcon, Nichole Jefferson, Sally Crowe, Thomas Smith

Webinars

Bringing new voices to research and building diversity. PxP 2024 Day 2, Session 3.

Year: 2024

Authors: Oluwafemi Ajayi, Patricia de Luca, Stephanie Paravan, Raissa Amany

Webinars

Publishing as (and with) patient partners. PxP 2024 Day 3, Session 1.

Year: 2024

Authors: Harry Iles-mann, Nidhi Swarup, Sophia Walker, Clare Ardern

Webinars

Highlighting other types of (often non-academic) patient partnerships. PxP 2024 Day 3, Session 2.

Year: 2024

Authors: Ella Balasa, Thelma Barber, Zac Miles, Runcie Chidebe

Webinars

Learning about different types of recognition for patient partners. PxP 2024 Day 3, Session 3.

Year: 2024

Authors: Jack Nunn, Kimberly Strain, Kwanele Asante, Sarah Lukeman

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