RESOURCE HUB

Looking for articles, webinars, and other resources on a variety of health research topics? Explore our library below filtered by resource type.

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Other Tools

The Pathway of Patient Engagement in Rheumatology Research

Authors: Rheum Action Council

Website

Collection of links to the work of Marina Noordegraaf

Year: Various

Authors: Marina Noordegraaf

PDF

Medical Education and Research Involvement with Patient and Public Partners

Year: Unknown

Authors: Amy Price DPhil, Larry Chu MD | Stanford Anesthesia Informatics and Media (AIM) Lab

Other Tools

Patient Compensation Tools

Year: Unknown

Authors: National Health Council

Website

Health Research BC

Authors: Health Research BC

Website

Patient Advisors Network

Authors: Patient Advisors Network

Website

Alberta SPOR SUPPORT Unit (AbSPORU)

Authors: Alberta SPOR SUPPORT Unit (AbSPORU)

Other Tools

Patient Engagement in Research Scale

Authors: Clayon Hamilton, PhD

Article/Paper

The disappearance of the sick-man from medical cosmology, 1770–1870

Year: 2009

Authors: N.D. Jewson

Blog

Rosamund Snow: What makes a real patient?

Year: 2016

Authors: Rosamund Snow

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain and Zal Press

Article/Paper

Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study

Year: 2018

Authors: Mathie, E.; Wythe, H.; Munday, D.; et al.

Article/Paper

Patients as Partners in Research: It’s the Right Thing to Do

Year: 2019

Authors: Joletta Belton, MSc, Alison Hoens, MSc, BScPT, Alex Scott, PT, PhD, Clare L. Ardern, PT, PhD

Article/Paper

Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation

Year: 2020

Authors: Petkovic, J., Riddle, A., Akl, E.A. et al.

Article/Paper

A Healing Journey with Chronic Pain: A Meta-Ethnography Synthesizing 195 Qualitative Studies

Year: 2021

Authors: Francine Toye, PhD, Joletta Belton, MSc, Erin Hannink, DPT, Kate Seers, DSc, Karen Barker, PhD

Article/Paper

Being-in-the-Room Privilege: Elite Capture and Epistemic Deference

Year: 2021

Authors: Olúfẹ́mi Táíwò

Article/Paper

The sick-person rejects their disappearance

Year: 2021

Authors: Alex Haagaard

Article/Paper

Culturally responsive health research: A collaborative design model for equitable and sustainable community impact

Year: 2021

Authors: Janice Elizabeth Tufte, Rachel E Dungan, Sharon Attipoe-Dorcoo

Article/Paper

Patient-centered consultations for persons with musculoskeletal conditions

Year: 2022

Authors: Joletta Belton, Hollie Birkinshaw & Tamar Pincus

Article/Paper

Patient and public involvement in an international rheumatology translational research project: an evaluation

Year: 2022

Authors: Savia de Souza, Eva C. Johansson, Susanne Karlfeldt, Karim Raza & Ruth Williams

Learning Portal

Course: A How-to Guide for Patient Engagement in Research

Year: 2022

Authors: CIHR-IMHA Patient Engagement Research Ambassadors (PERA)

Article/Paper

Reflections on patient engagement by patient partners: how it can go wrong

Year: 2023

Authors: Dawn P. Richards, Sabrina Poirier, Vina Mohabir, Laurie Proulx, Sue Robins & Jeffery Smith

Article/Paper

My 5 top learnings from tracking my Parkinson for over a decade

Year: 2022

Authors: Sara Riggare

Webinars

The Promise of Patient-Led Research Integration into Clinical Registries and Research

Year: 2023

Authors: Council of Medical Speciality Societies

PDF

Patient-Led Research Scorecards

Year: 2023

Authors: Council of Medical Speciality Societies and Patient-Led Research Collaborative

Article/Paper

A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research

Year: 2023

Authors: Wannheden, C., Riggare, S., Luckhaus, J.L., et al.

Learning Portal

Patient Engagement Tool Kit

Year: 2023

Authors: Patient Outcomes Research to Advance Learning – PORTAL – PCORI funded project

Blog

A square peg in a round hole: Patient and public author affiliations in academic journals

Year: 2023

Authors: Dawn P. Richards and Jim Elliott

Article/Paper

Patients as Partners in Research: There Is Plenty of Help for Researchers

Year: 2020

Authors: Alison M. Hoens, MSc, BScPT, Joletta Belton, MSc, Alex Scott, PT, PhD, Clare L. Ardern, PT, PhD

Blog

IMHA’s Patient Engagement Research Ambassadors’ Journey to Developing “A How-to-Guide to Patient Engagement in Research”

Year: 2022

Authors: Dawn P Richards, Christine Thomas, and Gillian Newman

Blog

Case Study: Expanding and supporting the patient partner community in research

Year: 2023

Authors: Laurie Proulx, Nadine Lalonde, Anna Samson, Linda Roy, Julie McKenna

Blog

Engaging Patient Partners as Peer Reviewers of Grant Applications: Tips for Everyone Involved

Year: 2023

Authors: Dawn Richards, Deb Baranec, Eileen Davidson, Trudy Flynn

Blog

Co-creating through Social Media Crowdsourcing

Year: 2022

Authors: Dr. Dawn Richards

Website

European Patients’ Academy on Therapeutic Innovation (EUPATI)

Authors: EUPATI

Learning Portal

Open Classroom training resources on medicines R&D, medical devices and digital health

Authors: EUPATI

Learning Portal

EUPATI Learning Lab trainings for researchers on patient engagement

Authors: EUPATI

Other Tools

EUPATI Connect matchmaking platform for researchers and EUPATI Fellows

Authors: EUPATI

Learning Portal

PCORI Research Fundamentals

Authors: PCORI

Other Tools

Building Effective Multi-Stakeholder Research Teams

Authors: PCORI

Other Tools

Engagement Tool Resource Repository

Authors: PCORI

Other Tools

Engagement in Health Research Literature Explorer

Authors: PCORI

Article/Paper

Personalizing Research: Involving, Inviting, and Engaging Patient Researchers

Year: 2022

Authors: Dana Lewis

From Individuals to Systems and Contributions to Creations: Novel Framework for Mapping the Efforts of Individuals by Convening The Center of Health and Health Care

Year: 2022

Authors: Dana Lewis, Liz Salmi, Alicia Staley and John Harlow

Barriers to Citizen Science and Dissemination of Knowledge in Healthcare

Year: 2022

Authors: Dana Lewis

Article/Paper

Patient-Generated Hypotheses Journal Issue 1

Year: 2023

Authors: Patient-Led Research Collaborative

Website

Access CR Consumer Involvement Resources

Year: Various

Authors: Access CR

Other Tools

WHO framework for meaningful engagement of people living with noncommunicable diseases, and mental health and neurological conditions

Year: 2023

Authors: WHO

Other Tools

Toolkit for co-creating plain language summaries of publications with patients

Authors: Envision Pharma Group

Website

Plain language resources to support patient authorship of peer-reviewed publications

Authors: Envision the Patient

Article/Paper

Hidden in plain sight? Identifying patient-authored publications

Year: 2022

Authors: Jacqui Oliver, Dawn Lobban, Laura Dormer, Joanne Walker, Richard Stephens & Karen Woolley

Article/Paper

Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations

Year: 2020

Authors: Lauri Arnstein, Anne Clare Wadsworth, Beverley Anne Yamamoto, Richard Stephens, Kawaldip Sehmi, Rachel Jones, Arabella Sargent, Thomas Gegeny & Karen L. Woolley

PDF

Workbook to guide the development of a Patient Engagement In Research (PEIR) Plan

Year: 2018

Authors: Arthritis Research Canada, The PEIRS Project Team

Article/Paper

“He Who Owns the Data, Owns the Patient,” Black Participants and Clinical Trials

Year: 2022

Authors: Breanna Reeves

Article/Paper

Improving Kidney Disease Research in the Black Community: The Essential Role of Black Voices in the APOLLO Study

Year: 2021

Authors: Ana S. Iltis et al.

Article/Paper

Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research

Year: 2022

Authors: Azhar Farooqi, Karan Jutlla, Raghu Raghavan, Andrew Wilson, Mohammud Shams Uddin, Carol Akroyd, Naina Patel, Pamela Peggy Campbell-Morris & Aaisha Tasneem Farooqi

Webinars

Day 1 Session 1 Recording PxP 2023

Year: 2023

Authors: Angela Ruddock and Shoba Dawson

Webinars

Day 1 Session 2 Recording PxP 2023

Year: 2023

Authors: Maria Dutarte, Rebecca Mbewe, Christine Broderick, Linda Hunter and Trudy Flynn

Webinars

Day 1 Session 3 Recording PxP 2023

Year: 2023

Authors: Janice Tufte, Laurie Proulx, Anna Samson and Amy Price

Webinars

Day 2 Session 1 Recording PxP 2023

Year: 2023

Authors: Nader Ghasemlou, Linda Li, Diarmuid Denneny and Joletta Belton

Webinars

Grant Review 101: The Basics of Reviewing Grant Applications

Year: 2023

Authors: Dr. Dawn Richards for the Return to Health & Performance Lab (presentation slides also available on PxP Resource Hub)

Slide Decks

Presentation Slides for Grant Review 101: The Basics of Reviewing Grant Applications

Year: 2023

Authors: Dr. Dawn Richards for the Return to Health & Performance Lab (webinar recording also available on PxP Resource Hub)

Article/Paper

Personal science in Parkinson’s disease. A patient-led research study.

Year: 2022

Authors: Sara Riggare

Article/Paper

Recognizing patient partner contributions to health research: a systematic review of reported practices

Year: 2023

Authors: Grace Fox, Manoj M. Lalu, Tara Sabloff, Stuart G. Nicholls, Maureen Smith, Dawn Stacey, Faris Almoli & Dean A. Fergusson

Other Tools

CIHR-IMHA Patient Compensation Guideline

Year: 2023

Authors: Canadian Institutes of Health Research – Institute of Musculoskeletal Health and Arthritis

Other Tools

CIHR-IG Patient Partner Compensation Guidelines

Year: 2023

Authors: Canadian Institutes of Health Research – Institute of Genetics

Podcast

As Per Usual Podcast

Authors: Bryn Robinson and Anna Chudyk

Website

Patient Access to Papers

Authors: Elsevier

Blog

Participant Chat Summary from PxP 2023 Day 1 Session 1

Year: 2023

Authors: PxP Hub

Webinars

Day 2 Session 2 Recording PxP 2023

Year: 2023

Authors: Dana Lewis, Alex Haagaard, Sara Riggare and Trudy Flynn

Blog

Participant Chat Summary from PxP 2023 Day 1 Session 2

Year: 2023

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2023 Day 1 Session 3

Year: 2023

Authors: PxP Hub

Webinars

Day 2 Session 3 PxP 2023

Year: 2023

Authors: Hannah Wei, Sneha Dave and Linda Hunter

Webinars

Day 3 Session 1 Recording PxP 2023

Year: 2023

Authors: Lynn Laidlaw, Sabrina Poirier, Patrick Gee and Janelle Bowden

Webinars

Day 3 Session 2 Recording PxP 2023

Year: 2023

Authors: Alma McCormick, Hem Devan, Cheryl Davies and Sandra Jayacodi

Webinars

Day 3 Session 3 Recording PxP 2023

Year: 2023

Authors: Eileen Davidson, Karen Woolley, Joletta Belton and Janice Tufte

Blog

PxP Blog with Joletta Belton – Post 1

Year: 2023

Authors: Joletta Belton

Blog

Participant Chat Summary from PxP 2023 Day 2 Session 1

Year: 2023

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2023 Day 2 Session 2

Year: 2023

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2023 Day 2 Session 3

Year: 2023

Authors: PxP Hub

Blog

PxP Blog with Joletta Belton – Post 2

Year: 2024

Authors: Joletta Belton

Blog

Chat Summary from PxP and PERA 2024 Webinar 1

Year: 2024

Authors: PxP Hub

Webinars

PxP and PERA 2024 Webinar 1: Demystifying the research process from patient partner perspectives

Year: 2024

Authors: Ron Beleno, Trinity Lowthian and Ellen Wang

Blog

Chat Summary PxP and PERA Webinar 2 2024

Year: 2024

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2023 Day 3 Session 1

Year: 2023

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2023 Day 3 Session 2

Year: 2023

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2023 Day 3 Session 3

Year: 2023

Authors: PxP Hub

Article/Paper

Impact of sickle cell disease on patientsʼ daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY)

Year: 2020

Authors: Ifeyinwa Osunkwo et al.

Webinars

Motivations for being a patient partner in research

Year: 2024

Authors: Anna Samson, Larry Funnell, Therese Lane, and Kimberly Strain

Article/Paper

Recommendations for the development, implementation, and reporting of control interventions in efficacy and mechanistic trials of physical, psychological, and self-management therapies: the CoPPS Statement

Year: 2023

Authors: David Hohenschurz-Schmidt et al.

Article/Paper

Developing consensus on core outcome sets of domains for acute, the transition from acute to chronic, recurrent/episodic, and chronic pain: results of the INTEGRATE-pain Delphi process

Year: 2023

Authors: Giulia Bova et al.

Article/Paper

Who should I involve in my research and why? Patients, carers or the public?

Year: 2021

Authors: Kristina Staley, Jim Elliott, Derek Stewart and Roger Wilson

Article/Paper

Public involvement could usefully inform ethical review, but rarely does: what are the implications?

Year: 2017

Authors: Kristina Staley and Jim Elliott

Article/Paper

Sharing space at the research table: exploring public and patient involvement in a methodology priority setting partnership

Year: 2023

Authors: Nikita N. Burke et al.

Website

National Coalition for Cancer Survivorship (NCCS)

Authors: National Coalition for Cancer Survivorship (NCCS)

Website

Ovarian Cancer Research Alliance (OCRA)

Authors: Ovarian Cancer Research Alliance (OCRA)

Website

Camden Coalition

Authors: Camden Coalition

Article/Paper

“He Who Owns the Data, Owns the Patient,” Black Participants and Clinical Trials

Year: 2022

Authors: Breanna Reeves

Article/Paper

Improving Kidney Disease Research in the Black Community: The Essential Role of Black Voices in the APOLLO Study

Year: 2022

Authors: Ana S. Iltis et al.

PDF

Methods of Patient and Public Engagement

Year: 2020

Authors: University of Manitoba

Website

A non-technical summary of predatory journals and the impact they could have on the patient community

Year: 2022

Authors: The Ottawa Hospital Research Institute

PDF

Get Involved in Quality Improvement: A guide for Patient and Caregiver Advisors

Authors: Health Quality Ontario

Website

The Involvement Matrix

Authors: Various

Website

A series of co-developed knowledge tools that are applicable in a variety of research contexts on engaging patients and families

Authors: Kids Brain Health Network

Article/Paper

Reflections on patient engagement by patient partners: how it can go wrong

Year: 2023

Authors: Dawn P Richards et al.

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain and Zal Press

Website

CPN Resources for Patients

Authors: Chronic Pain Network (CPN)

Website

Solutions for Kids in Pain (SKIP) Resources

Authors: Solutions for Kids in Pain (SKIP)

Website

Consumer Involvement & Engagement Toolkit

Authors: Australian Clinical Trials Alliance

Website

Resources to evaluate and improve Community Advisory Committees

Authors: Health Issues Centre

Website

A curated selection of resources to support and involve consumers in research

Year: 2022

Authors: AccessCR

Article/Paper

Patient engagement in a Canadian health research funding institute: implementation and impact

Year: 2024

Authors: Dr. Dawn P Richards et al.

Article/Paper

Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Year: 2024

Authors: Dr. Dawn P Richards et al.

Article/Paper

Conferences led by patients facilitate democratic decision making in healthcare

Year: 2024

Authors: Ajayi O, Gee P, Mulhall H, Richards D P, Riggare S.

Article/Paper

Patient-driven research priorities for patient-centered measurement

Year: 2024

Authors: Howard, A.F., Warner, L., Cuthbertson, L. et al.

Webinars

A patient editor’s take on scientific publishing with Richard Stephens

Year: 2024

Authors: Richard Stephens

Blog

PxP Blog with Joletta Belton – Post 3

Year: 2024

Authors: Joletta Belton

Website

SKIP (Solutions for Kids in Pain) Resources

Authors: Richard Stephens

Article/Paper

Co-designing clinical trials alongside youth with chronic pain

Year: 2023

Authors: Zina Zaslawski et al.

Article/Paper

Engaging youth and parents in clinical pediatric research: A case-based example

Year: 2023

Authors: Elise G Martin et al.

PDF

Procedural pain management in children & youth: A toolkit for health professionals

Authors: Various

Article/PaperWebsite

Stemming the tide: Investing early in the mental health of Ontario’s 7- to 12-year-olds

Year: 2023

Authors: Various

Article/Paper

Patients as Partners in Research: There Is Plenty of Help for Researchers

Year: 2024

Authors: Alison M. Hoens, Joletta Belton, Alex Scott, Clare L. Ardern

Article/Paper

Harnessing People’s Lived Experience to Strengthen Health Systems and Support Equitable Musculoskeletal Health Care

Year: 2023

Authors: Joletta L. Belton, Helen Slater, T. K. Sundari Ravindran, Andrew M. Briggs

Article/Paper

Trustworthy Evidence to Support Quality Digital Healthcare Policy for Underserved Communities: What Needs to Happen to Translate Evidence into Policy?

Year: 2024

Authors: Clare L. Ardern et al.

Article/Paper

World leaders unite to embed social participation in health systems

Year: 2024

Authors: Antoine Boivin, Vincent Dumez, Farin Shore, Amanda Bok

Article/Paper

The right to participate: An under-utilised component of the right to the highest attainable standard health

Year: 2021

Authors: Kwanele Asante

Website

What is Patient and Public Involvement and Engagement (PPIE)?

Authors: Health Data Research UK

Website

PPI (Patient and Public Involvement) resources for applicants to NIHR research programmes

Year: 2019

Authors: National Institute of Health and Care Research

Website

Kidney Patient Involvement

Authors: Kidney Research UK

Webinars

Bridging the Gap: A Personal Journey from Cystic Fibrosis to Patient Advocacy

Year: 2024

Authors: Ella Balasa

Article/Paper

Patient Engagement Needs More Benefit Analysis, Fewer Theoretical Conversations

Year: 2024

Authors: Ella Balasa

PDF

The PFMD Book of Good Practices

Authors: Patient Focused Medicines Development

Article/Paper

Patient authorship of medical research publications: An evolution, revolution, and solution?

Year: 2024

Authors: Karen L. Woolley et al.

Article/Paper

Engaging a community to focus on upper limb function in people with multiple sclerosis: the ThinkHand campaign case study

Year: 2024

Authors: Alison Thomson et al.

Article/PaperWebsite

Envisioning a Future for Including Patient Involvement in Vocational Training in the Life Sciences Industry

Authors: Liz Clark & Trishna Bharadia

Website

Our Recovery: A community program to help you survive and thrive in the face of pain

Authors: Our Recovery

Website

JLA Guidebook

Authors: James Lind Alliance

Website

UK Standards for Public Involvement in Research

Authors: UK Standards for Public Involvement

Website

Priorities for Health and Care Research

Year: 2024

Authors: Nuffield Department of Primary Care Health Sciences

Article/Paper

Does patient and public involvement impact public health decision-making? A 10 year retrospective analysis of public consultation in Brazil

Year: 2023

Authors: Ana Carolina De Freitas Lopes, Hillegonda Maria Dutilh Novaes & Patrícia Coelho De Soárez

Article/Paper

Meaningful Engagement of People Living With Noncommunicable Diseases: Challenges and Opportunities

Year: 2024

Authors: Mark Thomaz Ugliara Barone & Emma Klatman

PDF

Culture matters: using a cultural contexts of health approach to enhance policy-making

Authors: The World Health Organization

Other ToolsWebsite

The Patient Revolution: How We Can Heal the Healthcare System

Year: 2019

Authors: David Gilbert

PDF

The Patient Leadership Triangle

Authors: David Gilbert

Article/PaperWebsite

Humanising Healthcare

Year: 2022

Authors: David Gilbert

Website

Methods for Supporting Diverse Patient Engagement in a Diverse World: The BC SUPPORT Unit Tapestry Project

Authors: Health Research BC

Article/Paper

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain, Zal Press

Article/Paper

Patient engagement in designing, conducting, and disseminating clinical pain research: IMMPACT recommended considerations

Year: 2024

Authors: Haroutounian, Simon et al.

Article/Paper

Solutions for Kids in Pain: A Knowledge Mobilization Network Built on a Foundation of Patient Partnership

Year: 2024

Authors: Dawn P. Richards et al.

Website

InFORMed: Redesigning Consent to Research

Authors: InFORMed

Website

Tools for working together – Doing Research Together

Authors: NSW Regional and Health Partners

Website

Involving Consumers in Health and Medical Research: A practical handbook for organisations, researchers, consumers and funders

Authors: Western Australian Health Translation Network

Website

Consumer Involvement & Engagement Toolkit

Authors: Australian Clinical Trials Alliance

Website

The Kids Research Institute Australia is committed to providing opportunities for community members and health consumers to contribute to our research.

Year: 2024

Authors: The KIDS Research Institute Australia

Website

Endometriosis Australia

Authors: Endometriosis Australia

Website

Chronic Pain Australia

Authors: Chronic Pain Australia

Website

The National Aboriginal Community Controlled Health Organisation (NACCHO)

Authors: The National Aboriginal Community Controlled Health Organisation (NACCHO)

Blog

Creating a safe space for the public voice: Conversations on institutional violence

Year: 2024

Authors: Christopher Munt

Article/PaperWebsite

Standardised Data on Initiatives (STARDIT)

Year: 2024

Authors: Science for All

Article/PaperWebsite

Involve Australia – public involvement in genomic research

Authors: Australian Genomics

PDFWebsite

Involving People In Research Learning Resources

Year: 2024

Authors: Jack Nunn

Website

Solutions for Kids in Pain (SKIP)

Authors: Solutions for Kids in Pain

Website

Pediatric Pain

Authors: Children’s Healthcare Canada

Article/Paper

What does being “research active” mean for clinicians and their patients?

Year: 2018

Authors: Derek C Stewart

Article/Paper

Public involvement in UK health and careresearch 1995–2020: reflections from a witnessseminar

Year: 2024

Authors: Marisha Emily Palm et al.

Article/Paper

Designing a tool to support patient and public involvement in research projects: the Involvement Matrix

Year: 2020

Authors: Dirk-Wouter Smits, Karen van Meeteren, Martijn Klem, Mattijs Alsem & Marjolijn Ketelaar

Website

CP & Ontwikkeling

Authors: CP & Ontwikkeling

Article/Paper

Patients and Families as Partners in Patient-Oriented Research: How Should They Be Compensated?

Year: 2023

Authors: Monika Novak-Pavlic et al.

Webinars

Embracing the ‘lived experience’ part of your identity. PxP 2024 Day 1, Session 1.

Year: 2024

Authors: Angie Clerc-Hawke, Libby Humphris, Oluwafemi Ajayi, David Gilbert

Webinars

Raising the bar and sharing the power. PxP 2024 Day 1, Session 2.

Year: 2024

Authors: Cherelle Augustine, Patrick Gee, Zahra Alidina, Fez Awan

Webinars

Taking care as a patient partner. PxP 2024 Day 1, Session 3.

Year: 2024

Authors: Christopher Munt, Shyam Muthuramalingam, Rae Martens

Webinars

Exploring some of the ethics of patient partnership in research. PxP 2024 Day 2, Session 1.

Year: 2024

Authors: Isabel Jordan, Jim Elliott, Vina Mohabir, Simone Uwan

Webinars

Navigating difficult experiences in patient engagement. PxP 2024 Day 2, Session 2.

Year: 2024

Authors: Michael Falcon, Nichole Jefferson, Sally Crowe, Thomas Smith

Webinars

Bringing new voices to research and building diversity. PxP 2024 Day 2, Session 3.

Year: 2024

Authors: Oluwafemi Ajayi, Patricia de Luca, Stephanie Paravan, Raissa Amany

Webinars

Publishing as (and with) patient partners. PxP 2024 Day 3, Session 1.

Year: 2024

Authors: Harry Iles-mann, Nidhi Swarup, Sophia Walker, Clare Ardern

Webinars

Highlighting other types of (often non-academic) patient partnerships. PxP 2024 Day 3, Session 2.

Year: 2024

Authors: Ella Balasa, Thelma Barber, Zac Miles, Runcie Chidebe

Webinars

Learning about different types of recognition for patient partners. PxP 2024 Day 3, Session 3.

Year: 2024

Authors: Jack Nunn, Kimberly Strain, Kwanele Asante, Sarah Lukeman

Blog

Participant Chat Summary from PxP 2024 Day 1 Session 1

Year: 2024

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2024 Day 1 Session 2

Year: 2024

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2024 Day 1 Session 3

Year: 2024

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2024 Day 2 Session 1

Year: 2024

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2024 Day 2 Session 2

Year: 2024

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2024 Day 2 Session 3

Year: 2024

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2024 Day 3 Session 1

Year: 2024

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2024 Day 3 Session 2

Year: 2024

Authors: PxP Hub

Blog

Participant Chat Summary from PxP 2024 Day 3 Session 3

Year: 2024

Authors: PxP Hub

Article/PaperBlog

Remuneration of African patient partners is an important tool for health justice

Year: 2024

Authors: Kwanele Asante

Article/Paper

Caring for young adult men with inflammatory bowel disease: Clinician and patient perspectives

Year: 2024

Authors: Amy K. Bugwadia et al.

Article/Paper

Medical trauma in young adults with inflammatory bowel disease: The role of trauma-informed care

Year: 2024

Authors: Amy K. Bugwadi et al.

Article/PaperBlog

Dear sceptics of patient engagement in research

Year: 2024

Authors: Dawn P Richards

Blog

Attending In-person Research Conferences When Your Patient or Family Partners Have a Chronic Illness

Year: 2024

Authors: Rae Martens

PDF

How to Write a Plain Language Summary

Authors: Strategy for Patient-Oriented Research (SPOR) Evidence Alliance

PDF

Rédiger un résumé en langage simple

Authors: Alliance pour des données probantes de la SRAP

Other Tools

Plain Language Talk

Authors: Candace Ramjohn, Anna Samson, Hetty Mulhall

Other Tools

Discussion sur le Langage Simple

Authors: Candace Ramjohn, Anna Samson, Hetty Mulhall

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