RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

Photo shows a small part of the side of a person's head, with their back to the camera. The photo is mainly focused on the hands of this individual, which they are using to frame the sunset.
Webinars

Learning about different types of recognition for patient partners. PxP 2024 Day 3, Session 3.

Year: 2024

Authors: Jack Nunn, Kimberly Strain, Kwanele Asante, Sarah Lukeman

Webinars

Highlighting other types of (often non-academic) patient partnerships. PxP 2024 Day 3, Session 2.

Year: 2024

Authors: Ella Balasa, Thelma Barber, Zac Miles, Runcie Chidebe

Webinars

Publishing as (and with) patient partners. PxP 2024 Day 3, Session 1.

Year: 2024

Authors: Harry Iles-mann, Nidhi Swarup, Sophia Walker, Clare Ardern

Webinars

Bringing new voices to research and building diversity. PxP 2024 Day 2, Session 3.

Year: 2024

Authors: Oluwafemi Ajayi, Patricia de Luca, Stephanie Paravan, Raissa Amany

Webinars

Navigating difficult experiences in patient engagement. PxP 2024 Day 2, Session 2.

Year: 2024

Authors: Michael Falcon, Nichole Jefferson, Sally Crowe, Thomas Smith

Webinars

Exploring some of the ethics of patient partnership in research. PxP 2024 Day 2, Session 1.

Year: 2024

Authors: Isabel Jordan, Jim Elliott, Vina Mohabir, Simone Uwan

Webinars

Taking care as a patient partner. PxP 2024 Day 1, Session 3.

Year: 2024

Authors: Christopher Munt, Shyam Muthuramalingam, Rae Martens

Webinars

Raising the bar and sharing the power. PxP 2024 Day 1, Session 2.

Year: 2024

Authors: Cherelle Augustine, Patrick Gee, Zahra Alidina, Fez Awan

Webinars

Embracing the ‘lived experience’ part of your identity. PxP 2024 Day 1, Session 1.

Year: 2024

Authors: Angie Clerc-Hawke, Libby Humphris, Oluwafemi Ajayi, David Gilbert

Website

CP & Ontwikkeling

Authors: CP & Ontwikkeling

Article/Paper

Designing a tool to support patient and public involvement in research projects: the Involvement Matrix

Year: 2020

Authors: Dirk-Wouter Smits, Karen van Meeteren, Martijn Klem, Mattijs Alsem & Marjolijn Ketelaar

Website

Pediatric Pain

Authors: Children’s Healthcare Canada

Website

Solutions for Kids in Pain (SKIP)

Authors: Solutions for Kids in Pain

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