RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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Highlighting other types of (often non-academic) patient partnerships. PxP 2024 Day 3, Session 2.

Year: 2024

Authors: Ella Balasa, Thelma Barber, Zac Miles, Runcie Chidebe

Publishing as (and with) patient partners. PxP 2024 Day 3, Session 1.

Year: 2024

Authors: Harry Iles-mann, Nidhi Swarup, Sophia Walker, Clare Ardern

Bringing new voices to research and building diversity. PxP 2024 Day 2, Session 3.

Year: 2024

Authors: Oluwafemi Ajayi, Patricia de Luca, Stephanie Paravan, Raissa Amany

Navigating difficult experiences in patient engagement. PxP 2024 Day 2, Session 2.

Year: 2024

Authors: Michael Falcon, Nichole Jefferson, Sally Crowe, Thomas Smith

Exploring some of the ethics of patient partnership in research. PxP 2024 Day 2, Session 1.

Year: 2024

Authors: Isabel Jordan, Jim Elliott, Vina Mohabir, Simone Uwan

Taking care as a patient partner. PxP 2024 Day 1, Session 3.

Year: 2024

Authors: Christopher Munt, Shyam Muthuramalingam, Rae Martens

Raising the bar and sharing the power. PxP 2024 Day 1, Session 2.

Year: 2024

Authors: Cherelle Augustine, Patrick Gee, Zahra Alidina, Fez Awan

Embracing the ‘lived experience’ part of your identity. PxP 2024 Day 1, Session 1.

Year: 2024

Authors: Angie Clerc-Hawke, Libby Humphris, Oluwafemi Ajayi, David Gilbert

Patients and Families as Partners in Patient-Oriented Research: How Should They Be Compensated?

Year: 2023

Authors: Monika Novak-Pavlic et al.

CP & Ontwikkeling

Authors: CP & Ontwikkeling

Designing a tool to support patient and public involvement in research projects: the Involvement Matrix

Year: 2020

Authors: Dirk-Wouter Smits, Karen van Meeteren, Martijn Klem, Mattijs Alsem & Marjolijn Ketelaar

Public involvement in UK health and careresearch 1995–2020: reflections from a witnessseminar

Year: 2024

Authors: Marisha Emily Palm et al.

What does being “research active” mean for clinicians and their patients?

Year: 2018

Authors: Derek C Stewart

Pediatric Pain

Authors: Children’s Healthcare Canada

Solutions for Kids in Pain (SKIP)

Authors: Solutions for Kids in Pain

Involving People In Research Learning Resources

Year: 2024

Authors: Jack Nunn

Article/Paper Website

Involve Australia – public involvement in genomic research

Authors: Australian Genomics

Article/Paper Website

Standardised Data on Initiatives (STARDIT)

Year: 2024

Authors: Science for All

Creating a safe space for the public voice: Conversations on institutional violence

Year: 2024

Authors: Christopher Munt

The National Aboriginal Community Controlled Health Organisation (NACCHO)

Authors: The National Aboriginal Community Controlled Health Organisation (NACCHO)

Chronic Pain Australia

Authors: Chronic Pain Australia

Endometriosis Australia

Authors: Endometriosis Australia

The Kids Research Institute Australia is committed to providing opportunities for community members and health consumers to contribute to our research.

Year: 2024

Authors: The KIDS Research Institute Australia

Consumer Involvement & Engagement Toolkit

Authors: Australian Clinical Trials Alliance

Involving Consumers in Health and Medical Research: A practical handbook for organisations, researchers, consumers and funders

Authors: Western Australian Health Translation Network

Tools for working together – Doing Research Together

Authors: NSW Regional and Health Partners

InFORMed: Redesigning Consent to Research

Authors: InFORMed

Solutions for Kids in Pain: A Knowledge Mobilization Network Built on a Foundation of Patient Partnership

Year: 2024

Authors: Dawn P. Richards et al.

Patient engagement in designing, conducting, and disseminating clinical pain research: IMMPACT recommended considerations

Year: 2024

Authors: Haroutounian, Simon et al.

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain, Zal Press

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