RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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Additional Resources for Reading Academic and Scientific Papers

Authors: Linda Niksic and Tianna Magel

Comment lire un article scientifique

Authors: Dawn Richards et Jim Kempster

How to Read a Scientific Paper

Authors: Dawn Richards and Jim Kempster

Rapport communautaire sur la mobilisation des patients 2024 des ambassadeurs de la recherche axée sur le patient : processus d’élaboration et points saillants

Authors: Deb Baranec, Beth Ciavaglia, Anna Samson, Dawn Richards

Patient Engagement Research Ambassadors’ 2024 Community Patient Engagement Report: How we co-created it and some highlights

Authors: Deb Baranec, Beth Ciavaglia, Anna Samson, Dawn Richards

Discussion sur le Langage Simple

Authors: Candace Ramjohn, Anna Samson, Hetty Mulhall

Plain Language Talk

Authors: Candace Ramjohn, Anna Samson, Hetty Mulhall

Rédiger un résumé en langage simple

Authors: Alliance pour des données probantes de la SRAP

How to Write a Plain Language Summary

Authors: Strategy for Patient-Oriented Research (SPOR) Evidence Alliance

Attending In-person Research Conferences When Your Patient or Family Partners Have a Chronic Illness

Year: 2024

Authors: Rae Martens

Article/Paper Blog

Dear sceptics of patient engagement in research

Year: 2024

Authors: Dawn P Richards

Medical trauma in young adults with inflammatory bowel disease: The role of trauma-informed care

Year: 2024

Authors: Amy K. Bugwadi et al.

Caring for young adult men with inflammatory bowel disease: Clinician and patient perspectives

Year: 2024

Authors: Amy K. Bugwadia et al.

Article/Paper Blog

Remuneration of African patient partners is an important tool for health justice

Year: 2024

Authors: Kwanele Asante

Participant Chat Summary from PxP 2024 Day 3 Session 3

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 3 Session 2

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 3 Session 1

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 2 Session 3

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 2 Session 2

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 2 Session 1

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 1 Session 3

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 1 Session 2

Year: 2024

Authors: PxP Hub

Participant Chat Summary from PxP 2024 Day 1 Session 1

Year: 2024

Authors: PxP Hub

Learning about different types of recognition for patient partners. PxP 2024 Day 3, Session 3.

Year: 2024

Authors: Jack Nunn, Kimberly Strain, Kwanele Asante, Sarah Lukeman

Highlighting other types of (often non-academic) patient partnerships. PxP 2024 Day 3, Session 2.

Year: 2024

Authors: Ella Balasa, Thelma Barber, Zac Miles, Runcie Chidebe

Publishing as (and with) patient partners. PxP 2024 Day 3, Session 1.

Year: 2024

Authors: Harry Iles-mann, Nidhi Swarup, Sophia Walker, Clare Ardern

Bringing new voices to research and building diversity. PxP 2024 Day 2, Session 3.

Year: 2024

Authors: Oluwafemi Ajayi, Patricia de Luca, Stephanie Paravan, Raissa Amany

Navigating difficult experiences in patient engagement. PxP 2024 Day 2, Session 2.

Year: 2024

Authors: Michael Falcon, Nichole Jefferson, Sally Crowe, Thomas Smith

Exploring some of the ethics of patient partnership in research. PxP 2024 Day 2, Session 1.

Year: 2024

Authors: Isabel Jordan, Jim Elliott, Vina Mohabir, Simone Uwan

Taking care as a patient partner. PxP 2024 Day 1, Session 3.

Year: 2024

Authors: Christopher Munt, Shyam Muthuramalingam, Rae Martens

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