RESOURCE HUB

Our resource hub is updated regularly. We aim to bring our audience great tools, articles and webinars all in one place.

Can’t find what you were looking for? We’d love to hear from you. Send us an email, and we will do our best to help find a suitable resource. We might even write a new blog article 😊.

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Patients and Families as Partners in Patient-Oriented Research: How Should They Be Compensated?

Year: 2023

Authors: Monika Novak-Pavlic et al.

CP & Ontwikkeling

Authors: CP & Ontwikkeling

Designing a tool to support patient and public involvement in research projects: the Involvement Matrix

Year: 2020

Authors: Dirk-Wouter Smits, Karen van Meeteren, Martijn Klem, Mattijs Alsem & Marjolijn Ketelaar

Public involvement in UK health and careresearch 1995–2020: reflections from a witnessseminar

Year: 2024

Authors: Marisha Emily Palm et al.

What does being “research active” mean for clinicians and their patients?

Year: 2018

Authors: Derek C Stewart

Pediatric Pain

Authors: Children’s Healthcare Canada

Solutions for Kids in Pain (SKIP)

Authors: Solutions for Kids in Pain

Involving People In Research Learning Resources

Year: 2024

Authors: Jack Nunn

Article/Paper Website

Involve Australia – public involvement in genomic research

Authors: Australian Genomics

Article/Paper Website

Standardised Data on Initiatives (STARDIT)

Year: 2024

Authors: Science for All

Creating a safe space for the public voice: Conversations on institutional violence

Year: 2024

Authors: Christopher Munt

The National Aboriginal Community Controlled Health Organisation (NACCHO)

Authors: The National Aboriginal Community Controlled Health Organisation (NACCHO)

Chronic Pain Australia

Authors: Chronic Pain Australia

Endometriosis Australia

Authors: Endometriosis Australia

The Kids Research Institute Australia is committed to providing opportunities for community members and health consumers to contribute to our research.

Year: 2024

Authors: The KIDS Research Institute Australia

Consumer Involvement & Engagement Toolkit

Authors: Australian Clinical Trials Alliance

Involving Consumers in Health and Medical Research: A practical handbook for organisations, researchers, consumers and funders

Authors: Western Australian Health Translation Network

Tools for working together – Doing Research Together

Authors: NSW Regional and Health Partners

InFORMed: Redesigning Consent to Research

Authors: InFORMed

Solutions for Kids in Pain: A Knowledge Mobilization Network Built on a Foundation of Patient Partnership

Year: 2024

Authors: Dawn P. Richards et al.

Patient engagement in designing, conducting, and disseminating clinical pain research: IMMPACT recommended considerations

Year: 2024

Authors: Haroutounian, Simon et al.

Patient partner compensation in research and health care: the patient perspective on why and how

Year: 2018

Authors: Dawn P. Richards, Isabel Jordan, Kimberly Strain, Zal Press

Methods for Supporting Diverse Patient Engagement in a Diverse World: The BC SUPPORT Unit Tapestry Project

Authors: Health Research BC

Article/Paper Website

Humanising Healthcare

Year: 2022

Authors: David Gilbert

The Patient Leadership Triangle

Authors: David Gilbert

Other Tools Website

The Patient Revolution: How We Can Heal the Healthcare System

Year: 2019

Authors: David Gilbert

Culture matters: using a cultural contexts of health approach to enhance policy-making

Authors: The World Health Organization

Meaningful Engagement of People Living With Noncommunicable Diseases: Challenges and Opportunities

Year: 2024

Authors: Mark Thomaz Ugliara Barone & Emma Klatman

Does patient and public involvement impact public health decision-making? A 10 year retrospective analysis of public consultation in Brazil

Year: 2023

Authors: Ana Carolina De Freitas Lopes, Hillegonda Maria Dutilh Novaes & Patrícia Coelho De Soárez

Priorities for Health and Care Research

Year: 2024

Authors: Nuffield Department of Primary Care Health Sciences

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